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Great achievements don't come easy... Before surgery only 90° flexion on both knees and now I'm pushing over 140° on both. The body is incredible and I'm so thankful for modern medicine. . . . #RAwarrior #kneereplacement #rheumatoidarthritiswarrior #rheumatoidarthritis #goals #physicaltherapy #makokneereplacement #mako #invisibleillness #chronicillness #spoonielife #spoonie

Great achievements don't come easy... Before surgery only 90° flexion on both knees and now I'm pushing over 140° on both. The body is incredible and I'm so thankful for modern medicine. .
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 #RAwarrior #kneereplacement #rheumatoidarthritiswarrior #rheumatoidarthritis #goals #physicaltherapy #makokneereplacement #mako #invisibleillness #chronicillness #spoonielife #spoonie

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2019-06-21 22:17:56

Never let anyone treat you like you’re ordinary. #hyperpots #invisibledisability #mastcellactivationdisorder #chronicallyill #potssyndrome #posturalorthostatictachycardiasyndrome #dysautonomia #smallnerveneuropathy #gastroparesis #mastcellactivationsyndrome #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #invisibleillness #chronicpain #chronicallyill #chronicillness #butyoudontlooksick #selfie #weekendvibes #nightout #boohoo #disabled #parrysound

Never let anyone treat you like you’re ordinary.

 #hyperpots #invisibledisability #mastcellactivationdisorder #chronicallyill #potssyndrome #posturalorthostatictachycardiasyndrome #dysautonomia #smallnerveneuropathy #gastroparesis #mastcellactivationsyndrome #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #invisibleillness #chronicpain #chronicallyill #chronicillness #butyoudontlooksick #selfie #weekendvibes #nightout #boohoo #disabled #parrysound

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2019-06-21 22:17:13

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You will be able to write anonymous reviews of the accessibility environment of your employer on 7-30-19. Most enterprises don’t prioritize accessibility. Here are a few facts:⁣ ⁣ 1. Companies rarely provide interviews that are accessible for people who may need assistive technology. Only 55% of business that participated in the Disability Equality Index have a company-wide external and internal commitment to digital accessibility⁣ 2. Only 30% of DEI businesses have a company-wide disability focused goal(s) in place for supplier diversity and inclusion.⁣ 3. Companies that do hire people with disabilities and chronic illnesses rarely engage with disabled and chronically ill employees about accommodations that they need. ⁣ 4. Large companies rarely audit their infrastructure for accessibility or their digital software for accessibility. In fact, 71% of DEI businesses have a smart-phone app available for use by the public, but just 34% of DEI businesses have audited the app for accessibility.⁣ .⁣ .⁣ .⁣ .⁣ .⁣ #accessibility #disability #disabled #justice #startup #womenintech #tech #inequality #equity #jobs #chronicillness #chronicdisease #chronic #ranking #job #unitedstates #siliconvalley #tech #womenempowerment #womensrights #business #law #coding #programming

You will be able to write anonymous reviews of the accessibility environment of your employer on 7-30-19. Most enterprises don’t prioritize accessibility. Here are a few facts:⁣
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1. Companies rarely provide interviews that are accessible for people who may need assistive technology. Only 55% of business that participated in the Disability Equality Index have a company-wide external and internal commitment to digital accessibility⁣
2. Only 30% of DEI businesses have a company-wide disability focused goal(s) in place for supplier diversity and inclusion.⁣
3. Companies that do hire people with disabilities and chronic illnesses rarely engage with disabled and chronically ill employees about accommodations that they need. ⁣
4. Large companies rarely audit their infrastructure for accessibility or their digital software for accessibility. In fact, 71% of DEI businesses have a smart-phone app available for use by the public, but just 34% of DEI businesses have audited the app for accessibility.⁣
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 #accessibility #disability #disabled #justice #startup #womenintech #tech #inequality  #equity #jobs #chronicillness #chronicdisease #chronic #ranking #job #unitedstates #siliconvalley #tech #womenempowerment #womensrights #business #law #coding #programming

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2019-06-21 22:16:28

My doctors decided I should quit taking Otezla, due to experiencing some freakishly awful side effects (like I legit called my rheum nurse and told her I was pretty sure I was going to die, which didn’t even seem dramatic at the time lol). This drug is often considered a “miracle” drug. So, my body rejecting the drug feels like the worst kind of betrayal. It sucks. I’m sad and angry. I cried. I had 3 appointments in the past 48 hours to figure out a new plan. As one doc said, “you have a rare manifestation of a rare disease. We just don’t know much about it; but we will try until we figure it out. This disease will not define you.” As I wait to hear back about what the next step will be, I’m using my docs words as a new mantra to replace the inherent anxiety with gratitude. I’m so damn grateful that I have geographical access to medical care, the financial means to seek different treatments, and a community of people to remind me that this disease will not define me...no matter how freaking hard it tries. #autoimmunedisease #autoimmunediseaseawareness #chronicillness #chronicillnessawareness #chronicpain #vasculitis #behcetsdisease #behcetswarrior #behcetsawareness #spoonie #spooniesupport #otezla #sickasshit #makingchronicillnesscool #butyoudontlooksick

My doctors decided I should quit taking Otezla, due to experiencing some freakishly awful side effects (like I legit called my rheum nurse and told her I was pretty sure I was going to die, which didn’t even seem dramatic at the time lol). This drug is often considered a “miracle” drug. So, my body rejecting the drug feels like the worst kind of betrayal. It sucks. I’m sad and angry. I cried. 
I had 3 appointments in the past 48 hours to figure out a new plan. As one doc said, “you have a rare manifestation of a rare disease. We just don’t know much about it; but we will try until we figure it out. This disease will not define you.” As I wait to hear back about what the next step will be, I’m using my docs words as a new mantra to replace the inherent anxiety with gratitude. I’m so damn grateful that I have geographical access to medical care, the financial means to seek different treatments, and a community of people to remind me that this disease will not define me...no matter how freaking hard it tries.  #autoimmunedisease #autoimmunediseaseawareness #chronicillness #chronicillnessawareness #chronicpain #vasculitis #behcetsdisease #behcetswarrior #behcetsawareness #spoonie #spooniesupport #otezla #sickasshit #makingchronicillnesscool #butyoudontlooksick

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2019-06-21 22:15:19

Today. We wear shades. 🕶 On this longest day of the year, we wear our sunglasses to support the 37 million Americans, me included, who have migraine disease. Migraine Solidarity Day is a day to let the world know about this invisible, painful, unpredictable and stigmatized disease that affects so many people. #shadesformigraine #migrainestrong #migrainesolidarityday #migraine #livingwithmigraine #mymigrainestory #summersolstice #moveagainstmigraine @amfmigraine #migraineandheadacheawarenessmonth #migrainelife #chronicmigraine #photooftheday #invisibleillness #chronicillness #chronicpain #migraineisnotjustaheadache

Today. We wear shades. 🕶 
On this longest day of the year, we wear our sunglasses to support the 37 million Americans, me included, who have migraine disease. 
Migraine Solidarity Day is a day to let the world know about this invisible, painful, unpredictable and stigmatized disease that affects so many people. 
 #shadesformigraine #migrainestrong #migrainesolidarityday #migraine #livingwithmigraine #mymigrainestory #summersolstice #moveagainstmigraine @amfmigraine #migraineandheadacheawarenessmonth #migrainelife #chronicmigraine #photooftheday 
 #invisibleillness #chronicillness #chronicpain #migraineisnotjustaheadache

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2019-06-21 22:15:16

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Finally got my Fitbit to track my heart rate throughout the day! 🚴🏻‍♀️ #potssyndrome #potsie #potsielife #potsie_probs #potsiestrong #potsies #potsiegirl #dysautonomia #dysautonomiaawareness #chronicillness #chronicillnessawareness

Finally got my Fitbit to track my heart rate throughout the day! 🚴🏻‍♀️ #potssyndrome #potsie #potsielife #potsie_probs #potsiestrong #potsies #potsiegirl #dysautonomia #dysautonomiaawareness #chronicillness #chronicillnessawareness

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2019-06-21 22:14:19

#Christian #ChristianVerses #DailyChristianVerse #JesusIsTheWay #ChronicIllness #ChronicPain #StormyArtDesigns

 #Christian #ChristianVerses #DailyChristianVerse #JesusIsTheWay #ChronicIllness #ChronicPain #StormyArtDesigns

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2019-06-21 22:14:06

Health update sorta. #chronicillness #chronicillnesswarrior #undiagnosed #autoimmune #mysteryillness #illnesses #goingtogtanswerssoonhopefully #whyamisick #whatswrongwithme

Health update sorta. #chronicillness #chronicillnesswarrior #undiagnosed #autoimmune #mysteryillness #illnesses #goingtogtanswerssoonhopefully #whyamisick #whatswrongwithme

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2019-06-21 22:14:03

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Literally pumping iron today! 🏋🏾‍♀️ Just when I think my ferritin/iron levels are more stable, I go for a checkup and...NOPE! I’m having the first of two treatments. The doc says it’s been a year since I had iron but I thought it was more recent. Maybe it’s why I’ve been having more trouble with dizziness and other symptoms. As usual, the nurses were exclaiming about my veins being small. The last few times I’ve always had to have the needle in my hand because they can’t find anything in my arm. It hurts and is much more uncomfortable but I’ve gotten used to it. The nurse today was a pro and was able to get it started with one shot and no digging!!! Yeah! Even if I don’t get any symptom relief, I’m hoping to get a boost of energy after this settles into my veins and my blood is transporting it’s oxygen again like it’s supposed to do. 🏃🏾‍♀️🏃🏾‍♀️🏃🏾‍♀️ . . . . . . #smallveins #ouch #health #chronicillnesswarrior #chronic #anemia #spoonielife #spoonie #fridaymood #healthjourney #chronicillnessblogger #mom #momlife #dallasblogger #dfwblogger #mommyblogger #momblogger #selfcare #peripheralneuropathy #survive #thrive #chronicillness #chronicpain #invisibleillness #warrior #spoonie #neuropathicpain #strong #rls #wellness

Literally pumping iron today! 🏋🏾‍♀️ Just when I think my ferritin/iron levels are more stable, I go for a checkup and...NOPE! I’m having the first of two treatments. The doc says it’s been a year since I had iron but I thought it was more recent. Maybe it’s why I’ve been having more trouble with dizziness and other symptoms. 
As usual, the nurses were exclaiming about my veins being small. The last few times I’ve always had to have the needle in my hand because they can’t find anything in my arm. It hurts and is much more uncomfortable but I’ve gotten used to it. The nurse today was a pro and was able to get it started with one shot and no digging!!! Yeah! Even if I don’t get any symptom relief, I’m hoping to get a boost of energy after this settles into my veins and my blood is transporting it’s oxygen again like it’s supposed to do. 🏃🏾‍♀️🏃🏾‍♀️🏃🏾‍♀️
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 #smallveins #ouch #health #chronicillnesswarrior #chronic #anemia #spoonielife #spoonie #fridaymood #healthjourney #chronicillnessblogger #mom #momlife #dallasblogger #dfwblogger #mommyblogger #momblogger #selfcare #peripheralneuropathy #survive #thrive #chronicillness #chronicpain #invisibleillness #warrior #spoonie #neuropathicpain #strong #rls #wellness

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2019-06-21 22:13:50

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Thank you @wickedgoodco for what you do! Not only are these vegan, plant-based cruelty-free and gluten-free, they're GREAT for folks with sensitive skin and noses like myself, AND many products are coconut-free!! The scents aren't synthetic at all, and there's a scent for anyone's preference! You can even do custom requests! It took me such a long time to discover this beautiful shop, but I found it! I was so frustrated in not being able to wear any perfumes due to the chemical content, or coconut oil in the natural perfumes. And you can order anything as a sample to see how it works with your body before committing to a fragrance. My favorites are Space Cake and Cinnamon Sugar so far. My referral link/discount code will be in the comments and in my BIO 🤘I just wanted to spread the word about an amazing shop, especially for those chemically-sensitive. #wickedgoodco #perfumes #colognes #plantbased #vegan #crueltyfree #glutenfree #coconutfree #coconutallergies #migraines #sensitive #wolfnose #natural #smellwickedgood #nomnoms #ehlersdanlossyndrome #chronicillness

Thank you @wickedgoodco for what you do! Not only are these vegan, plant-based cruelty-free and gluten-free, they're GREAT for folks with sensitive skin and noses like myself, AND many products are coconut-free!! The scents aren't synthetic at all, and there's a scent for anyone's preference! You can even do custom requests!

It took me such a long time to discover this beautiful shop, but I found it! I was so frustrated in not being able to wear any perfumes due to the chemical content, or coconut oil in the natural perfumes. And you can order anything as a sample to see how it works with your body before committing to a fragrance. My favorites are Space Cake and Cinnamon Sugar so far. My referral link/discount code will be in the comments and in my BIO 🤘I just wanted to spread the word about an amazing shop, especially for those chemically-sensitive.

 #wickedgoodco #perfumes #colognes #plantbased #vegan #crueltyfree #glutenfree #coconutfree #coconutallergies #migraines #sensitive #wolfnose #natural #smellwickedgood #nomnoms #ehlersdanlossyndrome #chronicillness

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2019-06-21 22:13:15

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hey everyone! sorry for not posting in almost a month. ive been pretty sick lately. the last update you got was when i had an endoscopy. the results came back and they found out that i have an intolerance for dairy. wow. most of the things i eat has dairy in it. it’s been pretty hard finding good non dairy products. a lot of the products are gross, which makes me not want to try anything because i don’t want to be grossed out again. i’m a very picky person! - - tags #chronicillness #invisibleillness #potssyndrome #pots #chronicillnessawareness #dysautonomia #dysautonomiaawareness #foryou #foryoupage #viral #virgo #longqtsyndrome #longqt

hey everyone! sorry for not posting in almost a month. ive been pretty sick lately. the last update you got was when i had an endoscopy. the results came back and they found out that i have an intolerance for dairy. wow. most of the things i eat has dairy in it. it’s been pretty hard finding good non dairy products. a lot of the products are gross, which makes me not want to try anything because i don’t want to be grossed out again. i’m a very picky person! -
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tags 
 #chronicillness #invisibleillness #potssyndrome #pots #chronicillnessawareness #dysautonomia #dysautonomiaawareness #foryou #foryoupage #viral #virgo #longqtsyndrome #longqt

2 1

 
 

2019-06-21 22:13:13

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Really milking that ken burns effect ✨ BUT more importantly - 🎵NEW MUSIC COMING SOON🎵 (including this special little tune)‼️ 🎸: @andmaterials . . . . #musiclovers #newartist #chronsandcolitis #ulcerativecolitis #studio #ostomate #folk #rock #pop #chronicillness #singersongwriter #newmusic

Really milking that ken burns effect ✨ BUT more importantly - 🎵NEW MUSIC COMING SOON🎵 (including this special little tune)‼️
🎸: @andmaterials .
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 #musiclovers #newartist #chronsandcolitis #ulcerativecolitis #studio #ostomate #folk #rock #pop #chronicillness #singersongwriter #newmusic

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2019-06-21 22:13:08

They’re not cured with piercings, or prayers, or what your great aunt Brenda use to do either! Couldn’t let June slip away without a migraine awareness post!! Remember just because someone looks fine or acts fine doesn’t mean they are fine. We are masters of faking it so we don’t have to answer questions or be singled out. My social media doesn’t show how bad it is most of the time, because I choose not to let it consume who I am or define me. Unfortunately, Skylan inherited them from me (yes, they are inherited) but luckily she has a momma who knows how to comfort her from experience! You wouldn’t believe the countless nights we are up together just trying to feel better! #notapitypost #reallifepost #migraineawarenessmonth #neurologicaldisease #migrainesolidarityday #notjustaheadache #chronicpain #chronicillness #invisibleillness #migraine #migraineur #migraines

They’re not cured with piercings, or prayers, or what your great aunt Brenda use to do either! Couldn’t let June slip away without a migraine awareness post!! Remember just because someone looks fine or acts fine doesn’t mean they are fine. We are masters of faking it so we don’t have to answer questions or be singled out. My social media doesn’t show how bad it is most of the time, because I choose not to let it consume who I am or define me. Unfortunately, Skylan inherited them from me (yes, they are inherited) but luckily she has a momma who knows how to comfort her from experience! You wouldn’t believe the countless nights we are up together just trying to feel better! #notapitypost #reallifepost #migraineawarenessmonth #neurologicaldisease #migrainesolidarityday #notjustaheadache #chronicpain #chronicillness #invisibleillness #migraine #migraineur #migraines

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2019-06-21 22:12:48

True every time 😂😂🤦🏻‍♀️

True every time 😂😂🤦🏻‍♀️

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2019-06-21 22:12:38

Amen! #Christian #ChristianVerses #DailyChristianVerse #JesusIsTheWay #ChronicIllness #ChronicPain #StormyArtDesigns

Amen! #Christian #ChristianVerses #DailyChristianVerse #JesusIsTheWay #ChronicIllness #ChronicPain #StormyArtDesigns

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2019-06-21 22:12:16

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The message is a simple one. Medical cannabis saves lives. Veterans deserve full legal access. Through Operation Legal Access, our team of veterans, strategists and special operations advocates conduct Direct Action Missions in Washington D.C. These candid, round-table conversations allow veterans to share their stories with lawmakers, policy influencers and game changers. Help us change the conversation about the transformative, life-saving health treatment value of cannabis. #peaceforpatients #anxiety #veterans #ptsd #savelives #chronicpain #chronicillness #chemotherapy marijuanamovement #cbdmovement #cbdmovementuk #cancer #ptsd #ptsdawareness #ptsdrecovery #anxiety #anxietyrelief #anxietyattack #cancersucks

The message is a simple one. Medical cannabis saves lives. Veterans deserve full legal access. Through Operation Legal Access, our team of veterans, strategists and special operations advocates conduct Direct Action Missions in Washington D.C. These candid, round-table conversations allow veterans to share their stories with lawmakers, policy influencers and game changers. Help us change the conversation about the transformative, life-saving health treatment value of cannabis.  #peaceforpatients #anxiety #veterans #ptsd #savelives #chronicpain #chronicillness #chemotherapy marijuanamovement #cbdmovement #cbdmovementuk #cancer #ptsd #ptsdawareness #ptsdrecovery #anxiety #anxietyrelief #anxietyattack #cancersucks

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2019-06-21 22:11:39

Some quick info about what POTS is and a glimpse into what it’s like to live with it #pots #dysautonomia #chronicillness #spoonie

Some quick info about what POTS is and a glimpse into what it’s like to live with it
 #pots #dysautonomia #chronicillness #spoonie

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2019-06-21 22:11:25

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How cute are these reusable stackable cups from @starbucksuk ... I was good and didn’t get them but really hope the venti frosted tumbler comes over here soon because i keep seeing them on other people instagrams from @starbucks and I love them! Definitely would help me with recycling waste!

How cute are these reusable stackable cups from @starbucksuk ... I was good and didn’t get them but really hope the venti frosted tumbler comes over here soon because i keep seeing them on other people instagrams from @starbucks and I love them! Definitely would help me with recycling waste!

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2019-06-21 22:10:23

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I always treat myself on infusion day. My new infusion suite is right next to #deweyspizza. There is a service road between the doctors office and the pizza place!!! I am looking at the positive here. BTW, the Edgar Allan Poe pizza is great for me. No red sauce and does not upset my stomach. #ulcerativecolitis #ibd #colitis #chronicillness #autoimmunedisease #invisibleillness #inflammatoryboweldisease #ibdawareness #ibdwarrior #uc #ulcerativecolitisfighter #guthealth #ulcerativecolitisawareness #guthealing #inflammation #crohnsandcolitis #dublinohio

I always treat myself on infusion day. My new infusion suite is right next to #deweyspizza. There is a service road between the doctors office and the pizza place!!! I am looking at the positive here. BTW, the Edgar Allan Poe pizza is great for me. No red sauce and does not upset my stomach. #ulcerativecolitis #ibd #colitis #chronicillness #autoimmunedisease #invisibleillness #inflammatoryboweldisease #ibdawareness #ibdwarrior #uc #ulcerativecolitisfighter  #guthealth  #ulcerativecolitisawareness #guthealing #inflammation #crohnsandcolitis #dublinohio

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2019-06-21 22:10:08

Little man keeping me company on the road trip today. Driving through PA picking up Lego and Lego related stuff all day. We got an early start but the speed with which he wears out sometimes bums me out; being robbed of your energy by a genetic disorder sucks in your thirties, but at 8, it's just plain cruel. #EhlersDanlosAwareness #eds #EhlersDanlosSyndrome #EDSType3 #POTS #mcad #ZebraLife #Zebrakid #SpoonieLife #Spoonies #SpoonTheory #ChronicPain #chronicillness #InvisibleIllness #lifewithadisability

Little man keeping me company on the road trip today. Driving through PA picking up Lego and Lego related stuff all day. We got an early start but the speed with which he wears out sometimes bums me out; being robbed of your energy by a genetic disorder sucks in your thirties, but at 8, it's just plain cruel. #EhlersDanlosAwareness #eds #EhlersDanlosSyndrome #EDSType3 #POTS #mcad #ZebraLife #Zebrakid #SpoonieLife #Spoonies #SpoonTheory #ChronicPain #chronicillness #InvisibleIllness #lifewithadisability

6 1

 
 

2019-06-21 22:09:11

Werbung:

#facetofacefriday #FTFF left is April 4 and right is today! 💪 💪 #weightlosejourney #wlscommunity #wlsjourney #vsg #sleeved #iih #chronicillness #gastricsleeve #vsgjourney #vsgcommunity #vsgsurgery #bariatricsurgery #bariatricsleeve #healthjourney

 #facetofacefriday #FTFF left is April 4 and right is today! 💪
💪
 #weightlosejourney #wlscommunity #wlsjourney #vsg #sleeved #iih #chronicillness #gastricsleeve #vsgjourney #vsgcommunity #vsgsurgery #bariatricsurgery #bariatricsleeve #healthjourney

2 0

 
 

2019-06-21 22:08:53

It's happening!!!!! 😍 #announcement #grandopening

It's happening!!!!! 😍 #announcement #grandopening

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2019-06-21 22:08:40

You really do get what you pay for. Most therapists haven’t done the work to truly understand trauma and get results that are specific and measurable. After one session you’ll know if Accelerated Resolution Therapy is right for you. . . . . . . #traumafocusedtherapy #acceleratedresolutiontherapy #ptsd #anxiety #depression #mentalhealth #ptsd #mentalhealthwellbeing #mentalillness #cbd #bpd #ptsdawareness #recovery #trauma #cannabis #love #chronicpain #bipolar #cptsd #chronicillness #ocd #veterans #fibromyalgia #emdr #survivor #selflove #highperformance #highperformancetraining

You really do get what you pay for. Most therapists haven’t done the work to truly understand trauma and get results that are specific and measurable. After one session you’ll know if Accelerated Resolution Therapy is right for you. .
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 #traumafocusedtherapy #acceleratedresolutiontherapy #ptsd #anxiety #depression #mentalhealth #ptsd #mentalhealthwellbeing #mentalillness #cbd #bpd #ptsdawareness #recovery #trauma #cannabis #love #chronicpain #bipolar #cptsd #chronicillness #ocd #veterans #fibromyalgia #emdr #survivor #selflove #highperformance #highperformancetraining

4 0

 
 

2019-06-21 22:08:36

I figured I should show you guys the rough concept I've been working on for the cover of The Burden of Blood and Stone! The rough sketch is at the top and I want to have ogham script carved into the rocks. I'm still debating adding a minor character (a puun vaki) and maybe some oak boughs? This should be big enough for a full hardback dust jacket. This is also an experiment for me. I normally draw with a lot of lines in my artwork, but for this one, it'll be without lines. Definitely attempting to level up artistically! What do you guys think so far? Once its complete, I'll start uploading chapters on wattpad for feedback! #chronicillness #puunvaki #oak #theburdenofbloodandstone #tbobas #fae #highfae #sidhe #katherineperrywrites #thimsy #writerscommunity #wattpadstories #writersofinstagram #yaauthors #ya #fantasyauthor #urbanfantasy #bookcover #pitchwars

I figured I should show you guys the rough concept I've been working on for the cover of The Burden of Blood and Stone! The rough sketch is at the top and I want to have ogham script carved into the rocks. I'm still debating adding a minor character (a puun vaki) and maybe some oak boughs? This should be big enough for a full hardback dust jacket. This is also an experiment for me. I normally draw with a lot of lines in my artwork, but for this one, it'll be without lines. Definitely attempting to level up artistically! What do you guys think so far? Once its complete, I'll start uploading chapters on wattpad for feedback!
 #chronicillness #puunvaki #oak #theburdenofbloodandstone #tbobas #fae #highfae #sidhe #katherineperrywrites #thimsy #writerscommunity #wattpadstories #writersofinstagram #yaauthors #ya #fantasyauthor #urbanfantasy #bookcover #pitchwars

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2019-06-21 22:05:38

Access Egress will rank the accessibility at Fortune 500 companies based on the reviews that users write on the site. The first metric for gauging company accessibility will be by employee reviews of Fortune 500 businesses. As momentum builds, Access Egress will hold its own accessibility audits and release an annual list of the top 50 most accessible workplaces chosen by internal research and by user opinion. . . . . . #accessibility #disability #disabled #justice #startup #womenintech #tech #inequality #equity #jobs #chronicillness #chronicdisease #chronic #ranking #job #unitedstates #siliconvalley #tech #womenempowerment #womensrights #business #law #coding #programming

Access Egress will rank the accessibility at Fortune 500 companies based on the reviews that users write on the site. The first metric for gauging company accessibility will be by employee reviews of Fortune 500 businesses. As momentum builds, Access Egress will hold its own accessibility audits and release an annual list of the top 50 most accessible workplaces chosen by internal research and by user opinion. .
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 #accessibility #disability #disabled #justice #startup #womenintech #tech #inequality  #equity #jobs #chronicillness #chronicdisease #chronic #ranking #job #unitedstates #siliconvalley #tech #womenempowerment #womensrights #business #law #coding #programming

3 1

 
 

2019-06-21 22:05:10

Werbung:

Saw this and it struck a chord with me instantly I have never been one to do the expected, always been more of a tomboy, never a girly girl, never really got on with women, always preferred animals over people, prefer young children to adults, had tattoos and piercings before they were cool, home educate my children because its best for them not the government and try my best to live by treating others as I want to be treated. Never a sheep #independent #tomboy #rebel #notasheep #unconformist #treatothersasyouwanttobetreated #bekind #tattoo #piercings #doyou #dontfollow #dontfollowthecrowd #chronicillness #spoonie #disabledlife

Saw this and it struck a chord with me instantly

I have never been one to do the expected, always been more of a tomboy, never a girly girl, never really got on with women, always preferred animals over people, prefer young children to adults, had tattoos and piercings before they were cool, home educate my children because its best for them not the government and try my best to live by treating others as I want to be treated.

Never a sheep

 #independent #tomboy #rebel #notasheep #unconformist #treatothersasyouwanttobetreated #bekind #tattoo #piercings #doyou #dontfollow #dontfollowthecrowd #chronicillness #spoonie #disabledlife

5 1

 
 

2019-06-21 22:05:01

‪I was already thinking of writing a post about RESILIENCE today between sets at #FullertonDayofMusic ... and then I heard @davidfranciscomusic sing his song about being hit by a car in 2016, and I knew I had to write this. I could relate to EVERY LINE. He should warn people before he makes them ball in public 😭😭😭‬⁣ ⁣ ‪Going from independence and youth to feeling like your body is a prison cell with no key - overnight. The pain and loss and grief. Wanting to wake up from it, but knowing it's not a bad dream. Letting go of the dream of marriage. All the things. ‬⁣ ⁣ ‪When I was really sick (nine years later, I'm what I call "kinda sick" which is a lot more fun), I don't think I had a day where I was 100% in to my recovery process. There was always at least part of my heart saying "forget this" and "I can't." Maybe some people have total resolve, but I didn't. I had a choice: to step forward anyway. To let the jaded part of my heart say what it would, and let God heal me. ‬⁣ ⁣ ‪Resilience for me wasn't nice and neat. I WAS down for the count. I WASN'T invincible. The process wasn't pretty, and I wasn't an expert at it. ‬⁣ ⁣ ‪When life hurts you, breaks you, gives you way too much, and you feel the shadowy figures standing over you saying you're done, there is a power beyond just your own courage. There is a strength outside and inside of you that isn't just up to you. So the good news is that even when you're done, you're not done. ‬⁣ ⁣ ‪I couldn't do it, and I didn't do it. Resilience wasn't what I thought it was - resilience is letting Love fill you after all the frustration and fear have poured out onto the floor. Resilience is the breath that fills your lungs again after the news knocks the wind out of you for days. ‬⁣ ⁣ ‪Resilience is a seed under the ground that you don't see when you think you need it. It's moving underneath, alive in the quiet. It's why we're still standing, and our story is still being written. And ultimately we don't get the credit for our resilience; it's a gift. ‬

‪I was already thinking of writing a post about RESILIENCE today between sets at #FullertonDayofMusic ... and then I heard @davidfranciscomusic sing his song about being hit by a car in 2016, and I knew I had to write this. I could relate to EVERY LINE. He should warn people before he makes them ball in public 😭😭😭‬⁣
⁣
‪Going from independence and youth to feeling like your body is a prison cell with no key - overnight. The pain and loss and grief. Wanting to wake up from it, but knowing it's not a bad dream. Letting go of the dream of marriage. All the things. ‬⁣
⁣
‪When I was really sick (nine years later, I'm what I call "kinda sick" which is a lot more fun), I don't think I had a day where I was 100% in to my recovery process. There was always at least part of my heart saying "forget this" and "I can't." Maybe some people have total resolve, but I didn't. I had a choice: to step forward anyway. To let the jaded part of my heart say what it would, and let God heal me. ‬⁣
⁣
‪Resilience for me wasn't nice and neat. I WAS down for the count. I WASN'T invincible. The process wasn't pretty, and I wasn't an expert at it. ‬⁣
⁣
‪When life hurts you, breaks you, gives you way too much, and you feel the shadowy figures standing over you saying you're done, there is a power beyond just your own courage. There is a strength outside and inside of you that isn't just up to you. So the good news is that even when you're done, you're not done. ‬⁣
⁣
‪I couldn't do it, and I didn't do it. Resilience wasn't what I thought it was - resilience is letting Love fill you after all the frustration and fear have poured out onto the floor. Resilience is the breath that fills your lungs again after the news knocks the wind out of you for days. ‬⁣
⁣
‪Resilience is a seed under the ground that you don't see when you think you need it. It's moving underneath, alive in the quiet. It's why we're still standing, and our story is still being written. And ultimately we don't get the credit for our resilience; it's a gift. ‬

11 1

 
 

2019-06-21 22:04:41

Had an amazing time away but unfortunately having a good time and being out the whole day without pacing, resting and sleeping often means severe pain and exhaustion afterwards for cfs sufferers. . Even my hands hurt from the drive home. My body never ceases to amaze me when new muscles start hurting that I didn't realise I had 😂😂😂 . It's been a bit of a come down to be back home and having to suffer much more than usual just because I went out and enjoyed myself, but I'm hopeful that tomorrow is a new day where I can rest a bit more and take it easy and I have made some great memories with my husband 💕 . . Do you find your symptoms are worse after an outing or a holiday? ☀ 🍹 🏖 . . #cfswarrior #chronicillnessmemes #cfsawareness #spoonie #chronicfatiguesyndrome #chronicillness #meawareness #cfs #spoonielife #spoontheory #CanYouSeeMeNow #cfssupport #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoony #invisibleillness

Had an amazing time away but unfortunately having a good time and being out the whole day without pacing, resting and sleeping often means severe pain and exhaustion afterwards for cfs sufferers.
. 
Even my hands hurt from the drive home. My body never ceases to amaze me when new muscles start hurting that I didn't realise I had 😂😂😂
.
It's been a bit of a come down to be back home and having to suffer much more than usual just because I went out and enjoyed myself, but I'm hopeful that tomorrow is a new day where I can rest a bit more and take it easy and I have made some great memories with my husband 💕 .
. 
Do you find your symptoms are worse after an outing or a holiday? ☀ 🍹 🏖
.
. 
 #cfswarrior #chronicillnessmemes #cfsawareness #spoonie #chronicfatiguesyndrome #chronicillness #meawareness #cfs #spoonielife #spoontheory #CanYouSeeMeNow #cfssupport #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoony #invisibleillness

5 0

 
 

2019-06-21 22:04:34

Just living my life and thriving. Nothing can hold me back.... unless it’s EDS, POTS, GP, MCAS, ME/CFS, seizures and all the other crippling illness I have. I believe you shouldn’t limit yourself mentally, but, my god, not everything is achievable with will power, happy thoughts, and lavender. I tried to get to the library today, which is right down the road from my house. I lasted about 10 minutes trying not to vomit and pass out the entire time and then I came home and crashed. I was shivering uncontrollably, my temperature spiked, I was refluxing, and my pain and migraine went out of control. I’m at war with my body and no matter the amount of self love and positive affirmations will change this. Will I push to find the beauty and positivity in my life and try to make the most of it? Yes. Will it be easy? No. Will I achieve any of my life goals and dreams? Probably not. Life is hard and it’s important to be realistic and know the perfection we see on social media and believe everyone else... has except for ourselves.... is a huge misconception and completely fake. Let’s all struggle bus over the rainbow together. Don’t put yourself down for not being able to overcome your illness to achieve these unrealistic goals. Don’t let anybody tell you that you should be doing more and that you can do anything despite your illness. No, I’m not being a negative nancy, I just want to let you know that you are enough and whatever you can do is enough. Chronic illness is more than anybody should have to handle and you don’t need to feel bad if you are purely surviving. #survivingnotthriving #chronicillness #chronicpain #invisibleillness #disability #disabled #wheelchair #pwme #myalgicencephalomyelitis #mastcellactivationdisorder #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #seizures #gastroparesis #intestinaldysmotility #dysautonomia #tubie #meningioma #pcos #neuropathy #degenerativediscdisease #spoonieproblems

Just living my life and thriving.

Nothing can hold me back.... unless it’s EDS, POTS, GP, MCAS, ME/CFS, seizures and all the other crippling illness I have.

I believe you shouldn’t limit yourself mentally, but, my god, not everything is achievable with will power, happy thoughts, and lavender.

I tried to get to the library today, which is right down the road from my house. I lasted about 10 minutes trying not to vomit and pass out the entire time and then I came home and crashed. I was shivering uncontrollably, my temperature spiked, I was refluxing, and my pain and migraine went out of control.

I’m at war with my body and no matter the amount of self love and positive affirmations will change this.

Will I push to find the beauty and positivity in my life and try to make the most of it? Yes. Will it be easy? No. Will I achieve any of my life goals and dreams? Probably not. Life is hard and it’s important to be realistic and know the perfection we see on social media and believe everyone else... has except for ourselves.... is a huge misconception and completely fake.

Let’s all struggle bus over the rainbow together.

Don’t put yourself down for not being able to overcome your illness to achieve these unrealistic goals. Don’t let anybody tell you that you should be doing more and that you can do anything despite your illness. No, I’m not being a negative nancy, I just want to let you know that you are enough and whatever you can do is enough. Chronic illness is more than anybody should have to handle and you don’t need to feel bad if you are purely surviving.

 #survivingnotthriving #chronicillness #chronicpain #invisibleillness #disability #disabled #wheelchair #pwme #myalgicencephalomyelitis #mastcellactivationdisorder #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #seizures #gastroparesis #intestinaldysmotility #dysautonomia #tubie #meningioma #pcos #neuropathy #degenerativediscdisease #spoonieproblems

14 3

 
 

2019-06-21 22:04:25

This week has been like hell with si joint pain. My sacrum slipped on Tuesday and it’s just now calming down. I ordered this stuff thanks to my cousin and was able to cup & scrape my muscles then wear my si belt! So far after 2 days it’s getting better and I hope the results continue. I am trying to scrape daily and wear my si belt. I planed to cut weekly and soak a few times. @drteals has the best stuff in my opinion. This particular one I really enjoy the effects of Himalayan salt. I am trying to eat cleaner but it is so hard on the go! #jadescraper #sijointbelt #cuppingtherapy #selfcare #relaxation #spoonielife #edsproblems #itsamust #painrelief #ehlersdanlossyndrome #dysautonomia #chronicpain #chronicillness #invisibleillness #disabledworkers #pushlimits

This week has been like hell with si joint pain. My sacrum slipped on Tuesday and it’s just now calming down. I ordered this stuff thanks to my cousin and was able to cup & scrape my muscles then wear my si belt! So far after 2 days it’s getting better and I hope the results continue. I am trying to scrape daily and wear my si belt. I planed to cut weekly and soak a few times. @drteals has the best stuff in my opinion. This particular one I really enjoy the effects of Himalayan salt. I am trying to eat cleaner but it is so hard on the go! #jadescraper #sijointbelt #cuppingtherapy #selfcare #relaxation #spoonielife #edsproblems #itsamust #painrelief #ehlersdanlossyndrome #dysautonomia #chronicpain #chronicillness #invisibleillness #disabledworkers #pushlimits

3 0

 
 

2019-06-21 22:03:48

🎉CLEAN CANCER REPORT!🤘🏼I HAVE NO COLON POLYPS (baby tumors)! This was taken a couple hours after my colonoscopy!! They must not have given me much sedation because I was taking out the recycling and was awake until late after my colonoscopy. This is a huge relief. I’m very stressed out about my dad unfortunately. Trying to soak up the relief from this so I can gain strength for his next chapter. PLEASE GET YOUR CANCER SCREENINGS!!!! 🙏 #coloncancer #survivor #cancerprevention #lynchsyndrome #ovariancancer 4x #cancersurvivor #cancernews #cancersucks #cancergoaway #disabled #chronicillnesswarrior #chronicillness #chronic #spoonie #spoonielife #cancerscreening #coloncancerscreening GET THEM PLEASE!

🎉CLEAN CANCER REPORT!🤘🏼I HAVE NO COLON POLYPS (baby tumors)! This was taken a couple hours after my colonoscopy!! They must not have given me much sedation because I was taking out the recycling and was awake until late after my colonoscopy. This is a huge relief. I’m very stressed out about my dad unfortunately. Trying to soak up the relief from this so I can gain strength for his next chapter. PLEASE GET YOUR CANCER SCREENINGS!!!! 🙏 #coloncancer #survivor #cancerprevention #lynchsyndrome #ovariancancer 4x #cancersurvivor #cancernews #cancersucks #cancergoaway #disabled #chronicillnesswarrior #chronicillness #chronic #spoonie #spoonielife #cancerscreening #coloncancerscreening GET THEM PLEASE!

11 0

 
 

2019-06-21 22:03:42

We are now halfway through the year. Have you achieved the goals you set for yourself at the beginning of the year? These are some tips to help you to be successful in achieving your goals: ~ 1. Set specific goals. 2. Understand why you are settimg these goals. If there are superficial reasons for your particular goal, then you will most likely give up when things get difficult but if it is something that is important to you, then you will work hard to overcome any obstacles that may come. 3. Have attainable, realistic goals. 4. Define what your goals are. 5. Make sure your goals are measurable. with precise amounts, dates, etc. so that you can measure your success 6. Give yourself a timeline in which you want to accomplish your goal. ~ If you really set out to do the work to achieve your goals and incorporate these tips, then you can achieve anything you put your mind to in life. ~ #goalsetting #success #motivation #mentalhealth #womenshealth #endometriosis #endometriosisawareness #endowarrior #chronicillness #chronicpain #invisibleillness

We are now halfway through the year. Have you achieved the goals you set for yourself at the beginning of the year? These are some tips to help you to be successful in achieving your goals:
~
1. Set specific goals.
2. Understand why you are settimg these goals. If there are superficial reasons for your particular goal, then you will most likely give up when things get difficult but if it is something that is important to you, then you will work hard to overcome any obstacles that may come.
3. Have attainable, realistic goals.
4. Define what your goals are.
5. Make sure your goals are measurable. with precise amounts, dates, etc. so that you can measure your success
6. Give yourself a timeline in which you want to accomplish your goal.
~
If you really set out to do the work to achieve your goals and incorporate these tips, then you can achieve anything you put your mind to in life. ~
 #goalsetting #success #motivation #mentalhealth #womenshealth #endometriosis #endometriosisawareness #endowarrior #chronicillness #chronicpain #invisibleillness

3 1

 
 

2019-06-21 22:03:04

“You don’t look sick,” is a statement us chronic pain people hear all too often. What does “sick” look like? Does it look like a rash? Does it look like tubes connecting to machines? Is it someone who wears a sign alerting others that they are in fact sick? I often wonder what my fibromyalgia (and other ailments) would look like if you could REALLY see it. I was ashamed of my pain for the longest time. I felt like a cry baby. Confining in others about how I felt would often lead to regret due to the inevitable phrase, “You don’t look sick.” I finally decided that I would not hide how I felt. So, here we are. My name is Madison, most people call me Mads or Maddie. I’m a month shy of 26 and I suffer from a chronic pain disorder and a handful of other things. I am tired and some days, I don’t leave my bed 🤷🏻‍♀️ The posted photos are days where I experienced my widespread pain. The picture on the left was a good pain day. A good pain day for me is when I’m able to manage my symptoms and can enjoy most activities such as going out for dinner, etc. The picture on the right, however, is a bad pain day. The pain will make me lightheaded and incredibly exhausted. Sometimes, I even throw up from it. I cuddle up in bed, contemplating if I should force myself down the steps to make dinner or get the mail. This is the “sick” people don’t see. People do not see my family upset that they can’t take my pain away or my friends telling me they miss me because I yet again broke our plans. This pain makes makes [us] flaky, it makes us miss out. I don’t look sick, but my body feels like it. . . . . . #chronicpain #fibro #fibromyalgia #spoonies #chronicillness #pain #relief #spooniecommunity #arthritis #RA #empowerment #paindisorder #stress #anxiety #depression #chronicallymads #madsworld #invisibleillness #sick #fibrowarriorchallenge #hope #positivity #anxiety #depression #mentalillness #mentalhealth

“You don’t look sick,” is a statement us chronic pain people hear all too often. What does “sick” look like? Does it look like a rash? Does it look like tubes connecting to machines? Is it someone who wears a sign alerting others that they are in fact sick? I often wonder what my fibromyalgia (and other ailments) would look like if you could REALLY see it. I was ashamed of my pain for the longest time. I felt like a cry baby. Confining in others about how I felt would often lead to regret due to the inevitable phrase, “You don’t look sick.” I finally decided that I would not hide how I felt. So, here we are. My name is Madison, most people call me Mads or Maddie. I’m a month shy of 26 and I suffer from a chronic pain disorder and a handful of other things. I am tired and some days, I don’t leave my bed 🤷🏻‍♀️ The posted photos are days where I experienced my widespread pain. The picture on the left was a good pain day. A good pain day for me is when I’m able to manage my symptoms and can enjoy most activities such as going out for dinner, etc. The picture on the right, however, is a bad pain day. The pain will make me lightheaded and incredibly exhausted. Sometimes, I even throw up from it. I cuddle up in bed, contemplating if I should force myself down the steps to make dinner or get the mail. This is the “sick” people don’t see. People do not see my family upset that they can’t take my pain away or my friends telling me they miss me because I yet again broke our plans. This pain makes makes [us] flaky, it makes us miss out. I don’t look sick, but my body feels like it. .
.
.
.
.
 #chronicpain #fibro #fibromyalgia #spoonies #chronicillness #pain #relief #spooniecommunity #arthritis #RA #empowerment #paindisorder #stress #anxiety #depression #chronicallymads #madsworld #invisibleillness #sick #fibrowarriorchallenge #hope #positivity #anxiety #depression #mentalillness #mentalhealth

7 1

 
 

2019-06-21 22:02:50

Join us for Farm Day tomorrow, June 22, at the Plympton Tractor Supply from 10-3 to celebrate Sam's Birthday and get TWO of these awesome pain relief rollers for $50 (a $10 savings!) buddermeupcbd.com 😊 #cbd #cbdlotion #cbdoil #cbdbathbomb #cbdhealth #cbdheals #cbdmovement #cbdcompany #skincare #smallbusiness #businesswoman #business #cbdcures #hemp #hempoil #hempproducts #musclerecovery #chronicillness #chronicpain #buddermeup #cbdoverpharma #massage #holistichealing #holistichealth #cbdhaircare #kingston #boston #bostoncbd #followforfollowback #likeforfollow

Join us for Farm Day tomorrow, June 22, at the Plympton Tractor Supply from 10-3 to celebrate Sam's Birthday and get TWO of these awesome pain relief rollers for $50 (a $10 savings!) buddermeupcbd.com 😊

 #cbd #cbdlotion #cbdoil #cbdbathbomb #cbdhealth #cbdheals #cbdmovement #cbdcompany #skincare #smallbusiness #businesswoman #business #cbdcures #hemp #hempoil #hempproducts #musclerecovery #chronicillness #chronicpain #buddermeup #cbdoverpharma #massage #holistichealing #holistichealth #cbdhaircare #kingston #boston #bostoncbd #followforfollowback #likeforfollow

10 0

 
 

2019-06-21 22:02:33

Leg Update: My broken left leg is doing so much better now, the swelling has gone down a lot and there is very little pain when I walk on it. It is still a little swollen so I can’t wear my AFO brace on my left leg yet, so I’m wearing a boot instead. I have also lost a lot of muscle in my whole leg so the knee brace gives me support when I walk. I have a physio session on Monday and some X-rays in early July to see if it’s healed properly. Fingers crossed 🤞 #brokenleg #EDS #ehlersdanlossyndrome #CRPS #footdrop #AFO #chronicillness #spoonie

Leg Update: My broken left leg is doing so much better now, the swelling has gone down a lot and there is very little pain when I walk on it. It is still a little swollen so I can’t wear my AFO brace on my left leg yet, so I’m wearing a boot instead. I have also lost a lot of muscle in my whole leg so the knee brace gives me support when I walk. I have a physio session on Monday and some X-rays in early July to see if it’s healed properly. Fingers crossed 🤞 #brokenleg #EDS #ehlersdanlossyndrome #CRPS #footdrop #AFO #chronicillness #spoonie

33 3

 
 

2019-06-21 22:02:14

Werbung:

behind the scenes of @morethansick ✨ ⠀⠀⠀ ⠀⠀⠀ what i love about this art is that i can do it when i’m sick, when i’m fatigued, when i just want to stay in bed. i can create something people relate to; i can connect, even when i feel disconnected from myself.

behind the scenes of @morethansick ✨ ⠀⠀⠀
⠀⠀⠀
what i love about this art is that i can do it when i’m sick, when i’m fatigued, when i just want to stay in bed. i can create something people relate to; i can connect, even when i feel disconnected from myself.

34 1

 
 

2019-06-21 22:01:51

😂😂😂 Sounds about right! #spoonie #occipitalneuralgia #trigeminalneuralgia #flareup #chronic #chronicpain #chronicillness #fibromyalgia #fibrofog #rheumatoidarthritis #migraine #invisableillness #chronicfatigue #autoimmunedisease  #mumproblems #chronicpainwarrior #rawarrior #youdontlooksick #ibs #endometriosis #endowarrior #tired #fatigue #chronicillnesswarrior #fibrowarrior #chronicillnesslife #dailymemes #quotes #funny #memes

😂😂😂 Sounds about right! 
 #spoonie #occipitalneuralgia #trigeminalneuralgia #flareup #chronic #chronicpain #chronicillness #fibromyalgia #fibrofog #rheumatoidarthritis #migraine #invisableillness #chronicfatigue #autoimmunedisease  #mumproblems #chronicpainwarrior #rawarrior #youdontlooksick #ibs #endometriosis #endowarrior #tired #fatigue #chronicillnesswarrior #fibrowarrior #chronicillnesslife #dailymemes #quotes #funny #memes

95 2

 
 

2019-06-21 22:01:47

Koldtec: making rooftop yoga possible on summer afternoons 😍 . It’s officially the first day of summer in the USA, and I’m on the @koldtec ice towel bandwagon after unintentionally chasing summer across the globe! (really not ideal for an MSer) . Heat and resulting heat intolerance effects my body in debilitating and often extreme ways (such as inhibiting my legs from functioning), and stops me from attempting a lot of things I love to do . But this little towel has been following me everywhere while I’ve been in D.C, and it really is a game changer; I genuinely love it . To learn more about this handy little creation, the link is in my bio 😊 . Check my story for more about heat intolerance 🥵 and MS . . #koldtec #takinbacksummer #heatintolerance #yoga #rooftopyoga #summertime #multiplesclerosis #alwayssomethingtobethankfulfor #meditation #mindfulness #gratefulheart #travelwithdisability #travelwithchronicillness #ms #mslife #thisisms #invisibleillness #livingwithms #kissgoodbyetoms #chronicillness #mssymptoms #endometriosis #spoonie #spoonielife #fatigue #brainfog #sensoryoverload #exercisewithms #washingtondc #summerindc

Koldtec: making rooftop yoga possible on summer afternoons 😍
.
It’s officially the first day of summer in the USA, and I’m on the @koldtec ice towel bandwagon after unintentionally chasing summer across the globe! (really not ideal for an MSer)
.
Heat and resulting heat intolerance effects my body in debilitating and often extreme ways (such as inhibiting my legs from functioning), and stops me from attempting a lot of things I love to do
.
But this little towel has been following me everywhere while I’ve been in D.C, and it really is a game changer; I genuinely love it
.
To learn more about this handy little creation, the link is in my bio 😊
.
Check my story for more about heat intolerance 🥵 and MS
.
.
 #koldtec #takinbacksummer #heatintolerance #yoga #rooftopyoga #summertime #multiplesclerosis #alwayssomethingtobethankfulfor #meditation #mindfulness #gratefulheart #travelwithdisability #travelwithchronicillness #ms #mslife #thisisms #invisibleillness #livingwithms #kissgoodbyetoms #chronicillness #mssymptoms #endometriosis #spoonie #spoonielife #fatigue #brainfog #sensoryoverload #exercisewithms #washingtondc #summerindc

24 3

 
 

2019-06-21 22:01:25

This is Gaston’s Brew from Red Rose Taverne. It tastes kinda like apple juice. It’s non alcoholic. Have you ever had this? What do you think of this fruity drink? #disableddisney #chronicillness #fibrowarrior #chronicpain #invisibleillness #blogger #disneyblogger #disney #disneyisforeveryone #mobilitydisability #disabilitytravel #disabled #disabilityawareness #socalvacation #disneyland #disneyparks #smallyoutuber #disabilityblogger #arizonablogger

This is Gaston’s Brew from Red Rose Taverne. It tastes kinda like apple juice. It’s non alcoholic. Have you ever had this? What do you think of this fruity drink? #disableddisney #chronicillness #fibrowarrior #chronicpain #invisibleillness #blogger #disneyblogger #disney #disneyisforeveryone #mobilitydisability #disabilitytravel #disabled #disabilityawareness #socalvacation #disneyland #disneyparks #smallyoutuber #disabilityblogger #arizonablogger

8 0

 
 

2019-06-21 22:01:15

Something I always wondered about was whether I would be considered a ‘high risk’ pregnancy because of my ostomy. • Throughout our fertility and pregnancy journey, I’ve been completely shocked to know that my doctors haven’t worried about my ostomy at all! • I do get to see my regular OB doctor as well as Maternal Fetal Care because of my IBD. While they haven’t classified me as high risk, it’s nice to have that extra monitoring (plus we get to see Baby more often!) • I’ve loved and appreciate all of the pregnancy and mommy tips that you all have given me! It’s so interesting to learn about all of your experiences and I could not be more grateful for this community! 💜 • • • • • #ostomy #ostomybag #ileostomy #colostomy #ibd #inflammatoryboweldisease #pregnant #pregnancy #20weekspregnant #happy #happiness #inspiration #motivation #confidence #positivity #positivevibes #chronicillness #spoonie #autoimmunedisease #invisibleillness #health #selflove #loveyourself #baby #lifestyle #bodypositive #beautiful

Something I always wondered about was whether I would be considered a ‘high risk’ pregnancy because of my ostomy.
•
Throughout our fertility and pregnancy journey, I’ve been completely shocked to know that my doctors haven’t worried about my ostomy at all! •
I do get to see my regular OB doctor as well as Maternal Fetal Care because of my IBD. While they haven’t classified me as high risk, it’s nice to have that extra monitoring (plus we get to see Baby more often!)
•
I’ve loved and appreciate all of the pregnancy and mommy tips that you all have given me! It’s so interesting to learn about all of your experiences and I could not be more grateful for this community! 💜
•
•
•
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 #ostomy #ostomybag #ileostomy #colostomy #ibd #inflammatoryboweldisease #pregnant #pregnancy #20weekspregnant #happy #happiness #inspiration #motivation #confidence #positivity #positivevibes #chronicillness #spoonie #autoimmunedisease #invisibleillness #health #selflove #loveyourself #baby #lifestyle #bodypositive #beautiful

83 3

 
 

2019-06-21 22:01:14

It’s FIELD DAY today at school!! 😎🌤 We’re enjoying a fun day of outdoor activities, and I’m glad I brought these two along. ✨👆⁣⁣ ⁣⁣ YL’s mineral sunscreen is a must-have for the Summer! It’s the only natural, chemical-free sunscreen we trust besides our own homemade recipe (DM me for the DIY recipe). Most store-bought sunscreens are ridiculously TOXIC and some of the chemicals remain your body — as in, they literally don’t filter out! (Looking at you, oxybenzone 😡)⁣⁣ ⁣⁣ I’m also super glad I packed Owie at the last minute! Because with sprinklers and some small rain showers happening, the playground is v slippery and there have been LOTS of falls. Owie applied to a couple scrapped up knees has saved the day! 🙌✨⁣⁣ ⁣⁣ FIBRO WARRIORS: The whole reason I show y’all what chemical-free products we use is because living chemical-free is a fairly simple thing that you can do to drastically improve your condition...THINK: NO MORE FLARES. (‼️)⁣⁣ ⁣⁣ Living chemical-free doesn’t have to be complicated. All it takes is switching out some products for healthier options — and these two are wonderful replacements for store-bought sunscreen & first-aid ointments. 🙌🙌⁣⁣ ⁣⁣ Curious about going chemical-free? Shoot me a message and let’s chat! 😁😁⁣⁣ .⁣⁣ .⁣⁣ .⁣⁣ #chemicalfree #chemicalfreeliving #chemicalfreelife #chemicalfreeskincare #toxinfree #toxinfreeliving #youngliving #younglivingessentialoils #essentialoils #myoilyday #myoilylife #fieldday #fieldday2019 #kindergarten #kidlife #funinthesun #motherhoodrising #motherhoodsimplified #momlife #fibro #fibromyalgia #fibrowarrior #fibromyalgiaawareness #fibromialgia #chronicpain #chronicillness #spoonie #wellness #wellnessthatworks #wellnessjourney ⁣⁣

It’s FIELD DAY today at school!! 😎🌤 We’re enjoying a fun day of outdoor activities, and I’m glad I brought these two along. ✨👆⁣⁣
⁣⁣
YL’s mineral sunscreen is a must-have for the Summer! It’s the only natural, chemical-free sunscreen we trust besides our own homemade recipe (DM me for the DIY recipe). Most store-bought sunscreens are ridiculously TOXIC and some of the chemicals remain your body — as in, they literally don’t filter out! (Looking at you, oxybenzone 😡)⁣⁣
⁣⁣
I’m also super glad I packed Owie at the last minute! Because with sprinklers and some small rain showers happening, the playground is v slippery and there have been LOTS of falls. Owie applied to a couple scrapped up knees has saved the day! 🙌✨⁣⁣
⁣⁣
FIBRO WARRIORS: The whole reason I show y’all what chemical-free products we use is because living chemical-free is a fairly simple thing that you can do to drastically improve your condition...THINK: NO MORE FLARES. (‼️)⁣⁣
⁣⁣
Living chemical-free doesn’t have to be complicated. All it takes is switching out some products for healthier options — and these two are wonderful replacements for store-bought sunscreen & first-aid ointments. 🙌🙌⁣⁣
⁣⁣
Curious about going chemical-free? Shoot me a message and let’s chat! 😁😁⁣⁣
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 #chemicalfree #chemicalfreeliving #chemicalfreelife #chemicalfreeskincare #toxinfree #toxinfreeliving #youngliving #younglivingessentialoils #essentialoils #myoilyday #myoilylife #fieldday #fieldday2019 #kindergarten #kidlife #funinthesun #motherhoodrising #motherhoodsimplified #momlife #fibro #fibromyalgia #fibrowarrior #fibromyalgiaawareness #fibromialgia #chronicpain #chronicillness #spoonie #wellness #wellnessthatworks #wellnessjourney ⁣⁣

8 0

 
 

2019-06-21 22:01:07

Werbung:

Happy first day of summer! For many it's officially the season of spending more time outdoors and traveling to exciting destinations. However, for some Americans with chronic illnesses, these activities can be complicated. Fortunately, recent advancements make it possible for patients to travel and enjoy the summer months more easily as long as they do some thorough planning. Check out our latest blog post to learn more [link in bio]. . . . . . . . . #chronicdisease #chronicillness #chronicpain #summer #summertime #travel #traveling #adventures #pain #painmanagement #rheumatology #crohns #IBD #colitis #crohnswarrior #multiplesclerosis #lupus #lupuswarrior #mswarrior #rheumatoidarthritis #arthritis #psoriasis #psoriaticarthritis #asthma #allergies

Happy first day of summer! For many it's officially the season of spending more time outdoors and traveling to exciting destinations. However, for some Americans with chronic illnesses, these activities can be complicated. Fortunately, recent advancements make it possible for patients to travel and enjoy the summer months more easily as long as they do some thorough planning. Check out our latest blog post to learn more [link in bio].
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 #chronicdisease #chronicillness #chronicpain #summer #summertime #travel #traveling #adventures #pain #painmanagement #rheumatology #crohns #IBD #colitis #crohnswarrior #multiplesclerosis #lupus #lupuswarrior #mswarrior #rheumatoidarthritis #arthritis #psoriasis #psoriaticarthritis #asthma #allergies

3 0

 
 

2019-06-21 22:00:17

🔥Burn More Calories. Faster LASTING Results ☀️👙Lift Heavier = True Muscle & Lean Tone Body💯....... ForceFiiT💪🏼 ▪️ ▪️ ▪️ #sundayfunday #workout #workoutmotivation #workouts #sunday #abs #core #cardio #biceps #lift #muscle #fit #fitspo #fitness #fitgirl #running #run #runner #healthy #weightloss #motivation #plantbased #plantbaseddiet #ic #chronicillness #interstitialcystitis

🔥Burn More Calories. Faster LASTING Results ☀️👙Lift Heavier = True Muscle & Lean Tone Body💯....... ForceFiiT💪🏼
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 #sundayfunday #workout #workoutmotivation #workouts #sunday #abs #core #cardio #biceps #lift #muscle #fit #fitspo #fitness #fitgirl #running #run #runner #healthy #weightloss #motivation #plantbased #plantbaseddiet #ic #chronicillness #interstitialcystitis

23 2

 
 

2019-06-21 21:59:34

So...I'm thinking about starting a podcast. I mean, I listen to enough of them and spend hours editing and promoting them for my clients. It's actually super fun. (I'm a nerd like that.)⁣ ⁣ But there's a little thing called time and its friend energy who are standing in my way. Plus, I'm not exactly sure how I feel about the world listening to my ramblings every week. 😂⁣ ⁣ If I were to start a podcast, what topics would you want to hear about? #virtualassistant #virtualassistantlife #freelancerlife #blog #blogger #bosslady #workfromhome #spoonie #spoonielife #spooniesisters #spooniesisterhood #womeninbusiness #spooniepreneur #chronicillness #chronicpain #invisibleillness #mentalhealth #bipolar #anxiety #dontgiveup #spooniewarrior #butyoudontlooksick #heartcentered #youcandohardthings #lovewarrior #womenempoweringwomen #femalefounder #entrepreneur #bosslady #savvybusinessowners

So...I'm thinking about starting a podcast. I mean, I listen to enough of them and spend hours editing and promoting them for my clients. It's actually super fun. (I'm a nerd like that.)⁣
⁣
But there's a little thing called time and its friend energy who are standing in my way. Plus, I'm not exactly sure how I feel about the world listening to my ramblings every week. 😂⁣
⁣
If I were to start a podcast, what topics would you want to hear about?

 #virtualassistant #virtualassistantlife #freelancerlife #blog #blogger #bosslady #workfromhome #spoonie #spoonielife #spooniesisters #spooniesisterhood #womeninbusiness #spooniepreneur #chronicillness #chronicpain #invisibleillness #mentalhealth #bipolar #anxiety #dontgiveup #spooniewarrior #butyoudontlooksick #heartcentered #youcandohardthings #lovewarrior #womenempoweringwomen #femalefounder #entrepreneur #bosslady #savvybusinessowners

13 0

 
 

2019-06-21 21:59:26

Werbung:

Being a dual-military family means spending time apart. And we've had our fair share of it for sure. The reunions make it all worth it ❣️ #interstitialcystitis #spoonie #chronicillness #painwarrior #military #militarylife #armystrong #navy #usa #usmilitary #hooah #alaska #alaskalife #vacation #reunion #hello #visit #stlouis #scottafb #love #marriage

Being a dual-military family means spending time apart. And we've had our fair share of it for sure. The reunions make it all worth it ❣️ #interstitialcystitis #spoonie #chronicillness #painwarrior #military #militarylife #armystrong #navy #usa #usmilitary #hooah #alaska #alaskalife #vacation #reunion #hello #visit #stlouis #scottafb #love #marriage

6 0

 
 

2019-06-21 21:58:02

What’s in my shopping 🛒 💯 % GF - - Organic raspberries Bolthouse Farms salad dressing (Italian & Cilantro Avocado) Organic avocados 🥑 Organic Cilantro Bel Gioiosio Parmesan & Kasseri Organic Baby Carrots 🥕 Organic Super Greens Bare Apple Chips 🍏 Bare Cinnamon Banana Chips 🍌 Jackfruit Smoked Salmon Chobani Greek Yogurt Enjoy Life Dark Chocolate Chips The Essential Baking Co Bread Frozen Shrimp 🍤 Sukhis Yellow Rice Artichoke & Spinach Hummus Smoked Turkey Celestial Tea 🍵

What’s in my shopping 🛒 💯 % GF
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Organic raspberries 
Bolthouse Farms salad dressing (Italian & Cilantro Avocado) 
Organic avocados 🥑 
Organic Cilantro 
Bel Gioiosio Parmesan & Kasseri
Organic Baby Carrots 🥕 
Organic Super Greens 
Bare Apple Chips 🍏 
Bare Cinnamon Banana Chips 🍌
Jackfruit 
Smoked Salmon 
Chobani Greek Yogurt 
Enjoy Life Dark Chocolate Chips 
The Essential Baking Co Bread 
Frozen Shrimp 🍤 
Sukhis Yellow Rice
Artichoke & Spinach Hummus 
Smoked Turkey 
Celestial Tea 🍵

13 4

 
 

2019-06-21 21:57:47

#lupus #fibromyalgia #autoimmunedisease #chronicillness #Lupus #lupuswarrior #lupusawareness #Nutrition #love #chronicpain #endometriosis #diabetes #anxiety #invisibleillness #fibromialgia #fitness #health #multiplesclerosis #Fruits #Cereals #VeganLife #Grains #WellNess #Psoriasis #HealthCare #PlantBased #VeganHealth #VeganLifeStyle #Vegan #VeganCommunity

 #lupus #fibromyalgia #autoimmunedisease #chronicillness #Lupus #lupuswarrior #lupusawareness #Nutrition #love #chronicpain #endometriosis #diabetes #anxiety #invisibleillness #fibromialgia #fitness #health #multiplesclerosis #Fruits #Cereals #VeganLife #Grains #WellNess #Psoriasis #HealthCare #PlantBased #VeganHealth #VeganLifeStyle #Vegan #VeganCommunity

13 0

 
 

2019-06-21 21:56:54

#lupus #fibromyalgia #autoimmunedisease #chronicillness #Lupus #lupuswarrior #lupusawareness #Nutrition #love #chronicpain #endometriosis #diabetes #anxiety #invisibleillness #fibromialgia #fitness #health #multiplesclerosis #Fruits #Cereals #VeganLife #Grains #WellNess #Psoriasis #HealthCare #PlantBased #VeganHealth #VeganLifeStyle #Vegan #VeganCommunity

 #lupus #fibromyalgia #autoimmunedisease #chronicillness #Lupus #lupuswarrior #lupusawareness #Nutrition #love #chronicpain #endometriosis #diabetes #anxiety #invisibleillness #fibromialgia #fitness #health #multiplesclerosis #Fruits #Cereals #VeganLife #Grains #WellNess #Psoriasis #HealthCare #PlantBased #VeganHealth #VeganLifeStyle #Vegan #VeganCommunity

13 0

 
 

2019-06-21 21:56:27

A very very late #texturetuesday on a Friday.... 🤦🏻‍♀️

A very very late #texturetuesday on a Friday.... 🤦🏻‍♀️

49 8

 
 

2019-06-21 21:56:26

Werbung:

#lupus #fibromyalgia #autoimmunedisease #chronicillness #Lupus #lupuswarrior #lupusawareness #Nutrition #love #chronicpain #endometriosis #diabetes #anxiety #invisibleillness #fibromialgia #fitness #health #multiplesclerosis #Fruits #Cereals #VeganLife #Grains #WellNess #Psoriasis #HealthCare #PlantBased #VeganHealth #VeganLifeStyle #Vegan #VeganCommunity

 #lupus #fibromyalgia #autoimmunedisease #chronicillness #Lupus #lupuswarrior #lupusawareness #Nutrition #love #chronicpain #endometriosis #diabetes #anxiety #invisibleillness #fibromialgia #fitness #health #multiplesclerosis #Fruits #Cereals #VeganLife #Grains #WellNess #Psoriasis #HealthCare #PlantBased #VeganHealth #VeganLifeStyle #Vegan #VeganCommunity

10 0

 
 

2019-06-21 21:56:06

Wow, my eating issue seems to be improving by leaps and bounds. I actually ate this breakfast bowl. Bits of sausage and bacon. I am blown away. It was pretty strong tasting along with salty, but the fact I swallowed it with no choking.... well I can't express how happy I am. There was nothing healthy about it, but an occasional bowl wont hurt. Two years of wet cardboard and sand is for the most part in the past. I still have trouble with some things, but it's becoming less and less on each test run. Next Tuesday will be my next test. I only buy one thing at a time so I don't lose too much money if it doesn't work out. Hopefully if I am able to have the sinus surgery I will be able to get off the prednisone and lose the weight I have gained. Something to look forward to now. Hugs and love. #cancerlife #cancersucks #copd #disability #chroniclife #chronicillness #livingwithcancer #lifechanges #life #socialmedia #fridayfunday #hope #believe #clevelandohio #strongsvilleohio #newbeginnings

Wow, my eating issue seems to be improving by leaps and bounds. I actually ate this breakfast bowl. Bits of sausage and bacon. I am blown away. It was pretty strong tasting along with salty, but the fact I swallowed it with no choking.... well I can't express how happy I am. There was nothing healthy about it, but an occasional bowl wont hurt. Two years of wet cardboard and sand is for the most part in the past. I still have trouble with some things, but it's becoming less and less on each test run. Next Tuesday will be my next test. I only buy one thing at a time so I don't lose too much money if it doesn't work out. Hopefully if I am able to have the sinus surgery I will be able to get off the prednisone and lose the weight I have gained. Something to look forward to now. Hugs and love.
 #cancerlife #cancersucks #copd #disability #chroniclife #chronicillness #livingwithcancer #lifechanges #life #socialmedia #fridayfunday #hope #believe #clevelandohio #strongsvilleohio #newbeginnings

4 0

 
 

2019-06-21 21:55:34

Werbung:

There is always a reason to keep fighting 💪🏻. Comment below yours ... . . . #chronicillness #chronicpain #aneroxia #depressionhelp #getwellsoon #survivor #trauma #suicideprevention #adhd #peace #mentalhealth #mind #yoga #breathe #sad #ocd #awareness #loveyourself ❤️x

There is always a reason to keep fighting 💪🏻. Comment below yours ...
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 #chronicillness #chronicpain #aneroxia #depressionhelp #getwellsoon #survivor #trauma #suicideprevention #adhd #peace #mentalhealth #mind #yoga #breathe #sad #ocd #awareness #loveyourself ❤️x

6 3

 
 

2019-06-21 21:54:47

A year ago, I was diagnosed with Postural Orthostatic Tachycardia Syndrome, or POTS. Quite honestly, this year has been one of the hardest of my life, between doctors’ appointments, being a full-time student, and working multiple jobs. However, I have also improved so much in the past year and look forward to continuing to learn how to best manage my symptoms. . After thinking about it for a while, I finally decided to make an insta dedicated to my chronic illness and mental health experiences because finding a community on social media and seeing what helps others has been one of the most useful and meaningful things I’ve discovered for POTS. So I will be posting general health updates, info about POTS and related conditions, and recipes* and exercises** that I’ve been using to treat symptoms and feel my best. . *I’ve been trying to eat gluten-free and dairy-free due to test results I’ve recently received that indicate the possibility of gluten sensitivity, lactose intolerance, and some GI issues that I’m in the process of diagnosing. I’m not trying to cut these things out for weight loss, and with the gluten/dairy-free recipes I post, I will also mention modifications if you do want to have gluten/dairy in them. . **Before I had the right medical treatment for my POTS, doing even a little bit of exercise would make me super dizzy, so I want to acknowledge that not everything is beneficial for everyone in that department. I’m just trying to share workouts that are easier for me with hypermobility and tachycardia and seem to help me in hopes that they might help someone else.

A year ago, I was diagnosed with Postural Orthostatic Tachycardia Syndrome, or POTS. Quite honestly, this year has been one of the hardest of my life, between doctors’ appointments, being a full-time student, and working multiple jobs. However, I have also improved so much in the past year and look forward to continuing to learn how to best manage my symptoms.
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After thinking about it for a while, I finally decided to make an insta dedicated to my chronic illness and mental health experiences because finding a community on social media and seeing what helps others has been one of the most useful and meaningful things I’ve discovered for POTS. So I will be posting general health updates, info about POTS and related conditions, and recipes* and exercises** that I’ve been using to treat symptoms and feel my best.
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*I’ve been trying to eat gluten-free and dairy-free due to test results I’ve recently received that indicate the possibility of gluten sensitivity, lactose intolerance, and some GI issues that I’m in the process of diagnosing. I’m not trying to cut these things out for weight loss, and with the gluten/dairy-free recipes I post, I will also mention modifications if you do want to have gluten/dairy in them.
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**Before I had the right medical treatment for my POTS, doing even a little bit of exercise would make me super dizzy, so I want to acknowledge that not everything is beneficial for everyone in that department. I’m just trying to share workouts that are easier for me with hypermobility and tachycardia and seem to help me in hopes that they might help someone else.

0 1

 
 

2019-06-21 21:54:33

Werbung:

#lifeismeanttobelived #livelife #livelifetothefullest #living #upsanddowns #strongenough #strong #youarestrong #strength #strongwarrior #warriors #warrior #lessonlearned #learning #learn #growing #growth #daybyday #onestepatatime #yesyoucan #painreliefpartners #together #injectiontherapy #chiropractic #chronicallyawesome #chronic #chronicillness #hopeforhealing #vancouver #vancouverwa

 #lifeismeanttobelived #livelife #livelifetothefullest #living #upsanddowns #strongenough #strong #youarestrong #strength #strongwarrior #warriors #warrior #lessonlearned #learning #learn #growing #growth #daybyday #onestepatatime #yesyoucan #painreliefpartners #together #injectiontherapy #chiropractic #chronicallyawesome #chronic  #chronicillness #hopeforhealing #vancouver #vancouverwa

6 0

 
 

2019-06-21 21:54:21

Sad face :( between my knee, and the fact I can only take my inhaler so many times before I get the shakes, I cut my walk short. I did however get to walk so I'll take it. Still looking for free a free massage though😂😂 #pollencankissmyfuckingass #ineedtobreathe #walk #seriouslyneedthatmassage #chronicillness #ehlersdanlos #ehlersdanlossyndrome #eds

Sad face :( between my knee, and the fact I can only take my inhaler so many times before I get the shakes, I cut my walk short. I did however get to walk so I'll take it. Still looking for free a free massage though😂😂 #pollencankissmyfuckingass #ineedtobreathe #walk #seriouslyneedthatmassage #chronicillness #ehlersdanlos #ehlersdanlossyndrome #eds

1 1

 
 

2019-06-21 21:54:11

#stronginplank Day 5 - Side plank #strikeapose #practicemakesprogress . 💪 Hosts: @ina.yoga, @yogawithgandha, @carolineanneyoga and @abanna_yoga_art . 🙏 Sponsors: @liquidoactive, @yogadotom, @infinitystrap and @phantaiyoga #plankpose #corestability #corestrenght #bestrong #yogachallenge #startyoga #yogaforeverybody #beginnersyoga #yogastrong #strongarms #strongbodystrongmind #fitfam #fityoga #YogaLove #YogaMakesMeHappy #Yoga4Friendship #iamdoingthisforme #yogaforhealth #invisibleillness #chronicillness #uctd #spoonie #thayallmatter

 #stronginplank

Day 5 - Side plank

 #strikeapose #practicemakesprogress
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💪 Hosts: @ina.yoga, @yogawithgandha, @carolineanneyoga and @abanna_yoga_art
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🙏 Sponsors: @liquidoactive, @yogadotom, @infinitystrap and @phantaiyoga

 #plankpose #corestability #corestrenght #bestrong #yogachallenge #startyoga #yogaforeverybody #beginnersyoga #yogastrong #strongarms #strongbodystrongmind #fitfam #fityoga

 #YogaLove #YogaMakesMeHappy #Yoga4Friendship

 #iamdoingthisforme #yogaforhealth #invisibleillness #chronicillness #uctd #spoonie #thayallmatter

7 0

 
 

2019-06-21 21:54:08

Werbung:

I am officially a “Podder”!!! I went in this afternoon for my diabetes education session to set up my Omnipod! I am so excited, after 14 months on MDI I am really excited and ready for this change. I have already called Omnipod customer service, as the first pod I set up had a communication error. Thanks @jenhasdiabetes for giving me the tip to call, a new one is already on its way out! I have a feeling there is going to be a lot of playing around with the settings for these first couple of weeks, but I am soooo excited to have finally made the switch and can’t wait to get into a new routine with the pod! (And to upgrade to Dash in August!)

I am officially a “Podder”!!! I went in this afternoon for my diabetes education session to set up my Omnipod! I am so excited, after 14 months on MDI I am really excited and ready for this change. I have already called Omnipod customer service, as the first pod I set up had a communication error. Thanks @jenhasdiabetes for giving me the tip to call, a new one is already on its way out! I have a feeling there is going to be a lot of playing around with the settings for these first couple of weeks, but I am soooo excited to have finally made the switch and can’t wait to get into a new routine with the pod! (And to upgrade to Dash in August!)

14 2

 
 

2019-06-21 21:54:01

There is a dangerous love affair happening in the world: a love affair with pills. More than half of all people in America are taking prescription drugs, so it’s clear that the power of prevention is needed now more than ever. . We must stop glorifying quick-fixes and short-cuts to wellness. The natural route is the way to go. It takes more patience, but the results will actually last! What are your favorite home remedies to prevent illness? Please share in the comments! https://www.wholistic.com/blog/why-natural-healing-is-the-new-cure

There is a dangerous love affair happening in the world: a love affair with pills. More than half of all people in America are taking prescription drugs, so it’s clear that the power of prevention is needed now more than ever.
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We must stop glorifying quick-fixes and short-cuts to wellness. The natural route is the way to go. It takes more patience, but the results will actually last!

What are your favorite home remedies to prevent illness? Please share in the comments!

https://www.wholistic.com/blog/why-natural-healing-is-the-new-cure

12 1

 
 

2019-06-21 21:54:00

Werbung:

Well it’s nearly 10...let’s see what time these two actually go to sleep!...how many ups...downs...moans!...good job my sanity has already gone really! 🤪💤😳💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard #chronicfatiguesyndrome #book #craft #artsy

Well it’s nearly 10...let’s see what time these two actually go to sleep!...how many ups...downs...moans!...good job my sanity has already gone really! 🤪💤😳💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard #chronicfatiguesyndrome #book #craft #artsy

16 1

 
 

2019-06-21 21:53:57

Werbung:

Making the most of the fact that I've got a fresher face today than I have done...♡ As usual I've not been posting much at all on here. Not because I haven't wanted to, but because I've been physically struggling to function on a basic level. This week has been intense to say the least - don't feel I've even started to process it all... PoTS being absolutely atrocious, my lead practitioner leaving, sharing my story out loud for the first time in front of a room full of people, meeting someone else with DID in person, then getting weirded out when I found out she sees the same therapist as me, having a bad faint at work which was handled a bit chaotically tbh, general work stress, big developments with the police investigation etc. Today I had a pretty important meeting at work to discuss moving forwards. I knew I was going to have to hit hard with a bit of honesty, and finally I felt heard and a bit more understood. My main line was that I'm confident I can carry out the role and that the role will work, but not as it is. I reached a point in my head where I had accepted that physically the way things have been is not sustainable for me and can't continue. I shared some of my reality - I do my shift, I struggle to make it home, if I do make it, I'm left completely debilitated - can't move to attend to my most basic of needs and am wiped out for the rest of the week. They got it. I actually got an apology, which wasn't what I was expecting. Plan is to press pause on my role at the hospital, work to be done to get the role more established and also work to be done to have the support in place for me I need to be able to access and manage the role, I will do different duties for now from home until everything is in place to be able to return. I'm relieved. I felt heard...♡ ----- #selfie #blouse #freshfaced #thisisme #summer #work #lifeupdate #journal #mentalhealth #reality #honesty #chronicillness #disability #dysautonomia #potsie #posturalorthostatictachycardiasyndrome #cptsd #dissociativeidentitydisorder #change #traumarecovery #positivity #recovery #chaos

Making the most of the fact that I've got a fresher face today than I have done...♡
As usual I've not been posting much at all on here. Not because I haven't wanted to, but because I've been physically struggling to function on a basic level.
This week has been intense to say the least - don't feel I've even started to process it all... PoTS being absolutely atrocious, my lead practitioner leaving, sharing my story out loud for the first time in front of a room full of people, meeting someone else with DID in person, then getting weirded out when I found out she sees the same therapist as me, having a bad faint at work which was handled a bit chaotically tbh, general work stress, big developments with the police investigation etc.
Today I had a pretty important meeting at work to discuss moving forwards. I knew I was going to have to hit hard with a bit of honesty, and finally I felt heard and a bit more understood. My main line was that I'm confident I can carry out the role and that the role will work, but not as it is. I reached a point in my head where I had accepted that physically the way things have been is not sustainable for me and can't continue. I shared some of my reality - I do my shift, I struggle to make it home, if I do make it, I'm left completely debilitated - can't move to attend to my most basic of needs and am wiped out for the rest of the week. They got it. I actually got an apology, which wasn't what I was expecting. Plan is to press pause on my role at the hospital, work to be done to get the role more established and also work to be done to have the support in place for me I need to be able to access and manage the role, I will do different duties for now from home until everything is in place to be able to return. I'm relieved. I felt heard...♡
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 #selfie #blouse #freshfaced #thisisme #summer #work #lifeupdate #journal #mentalhealth #reality #honesty #chronicillness #disability #dysautonomia #potsie #posturalorthostatictachycardiasyndrome #cptsd #dissociativeidentitydisorder #change #traumarecovery #positivity #recovery #chaos

6 1

 
 

2019-06-21 21:53:10

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Moody selfie, bad pains today, roll on tomorrow #fibrofighter #fibromyalgia #fibrowarrior #thisgirlcan #invisibleillness #awareness #chronicillness #juststrongambassador #shamelessselfie

Moody selfie, bad pains today, roll on tomorrow #fibrofighter #fibromyalgia #fibrowarrior #thisgirlcan #invisibleillness #awareness #chronicillness #juststrongambassador #shamelessselfie

2 1

 
 

2019-06-21 21:52:37

Chronic illness, like everything else in life, refuses to follow the timelines and plans we create. The storms last night left me swollen and achy and now it’s fatigue time 😴 I leave the country in four days so for now I just have to roll with the punches. At least I have good company 🐶❤️ . . . . . . . #chronicillness #chronicpain #chronicfatigue #spoonie #spoonies #spooniesupport #spoonielife #emotionalsupportdog #emotionalsupportanimal

Chronic illness, like everything else in life, refuses to follow the timelines and plans we create. The storms last night left me swollen and achy and now it’s fatigue time 😴 I leave the country in four days so for now I just have to roll with the punches. At least I have good company 🐶❤️ .
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 #chronicillness #chronicpain #chronicfatigue #spoonie #spoonies #spooniesupport #spoonielife #emotionalsupportdog #emotionalsupportanimal

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2019-06-21 21:50:33

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A day in the life of the chronically ill... A few days ago I started #rituxan Infusions again. It takes me a few days to recover. I can't stand the way prednisone makes me feel physically and mentally. There are so many days I look in the mirror and don't recognize myself. Prednisone is given along with the infusions so it is always a mixed bag of blah I feel. By the time I recover from this I will receive my second infusion (July 1st). I most likely won't be participating in anything for the 4th of July. As a mother, this is all very hard for me. As a wife, this is all very hard for me. As a friend and family member, this is all very hard for me. Lupus controls my body. I am the robot and it has the remote. It would be nice to have control over my own life for a change... I know some of you guys are going through this too. I just wanted to let you know that I understand. 💜💜💜 #infusion #chronicillness #lupusawareness #lupuswarrior #chronicpain #chronicfatigue #fibromyalgia #fibrofog #lupusfog #spoonie #invisibleillness #flareup #autoimmunedisease #rawarrior #keepyourheadup #cantstopwontstop #rheumatoidarthritis #osteoarthritis #interstitialcystitis #endometriosis  #systemiclupuserythematosus #jointreplacement  #insomnia  #migraine  #heartdisease

A day in the life of the chronically ill... A few days ago I started #rituxan
Infusions again. It takes me a few days to recover. I can't stand the way prednisone makes me feel physically and mentally. There are so many days I look in the mirror and don't recognize myself. Prednisone is given along with the infusions so it is always a mixed bag of blah I feel.
By the time I recover from this I will receive my second infusion (July 1st). I most likely won't be participating in anything for the 4th of July.
As a mother, this is all very hard for me. As a wife, this is all very hard for me. As a friend and family member, this is all very hard for me. Lupus controls my body. I am the robot and it has the remote. It would be nice to have control over my own life for a change...
I know some of you guys are going through this too. I just wanted to let you know that I understand. 💜💜💜 #infusion #chronicillness #lupusawareness #lupuswarrior #chronicpain #chronicfatigue #fibromyalgia #fibrofog #lupusfog #spoonie #invisibleillness #flareup #autoimmunedisease #rawarrior 
 #keepyourheadup #cantstopwontstop

 #rheumatoidarthritis #osteoarthritis #interstitialcystitis #endometriosis  #systemiclupuserythematosus #jointreplacement  #insomnia  #migraine  #heartdisease

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2019-06-21 21:50:26

Another epilepsy warrior story! Meet Jesse and his journey with epilepsy! “My name is Jesse and I’ve had epilepsy since I was 15. I’m 27 now. I am a single dad to a 5 year old boy that encourages me everyday to keep going. I’m a big fan of anime and epilepsy has put me through a rollercoaster. From feeling isolated and helpless to being angry and wanting to give up. It’s mostly been a downhill ride. However, I’ve learned to keep my head up and well turn all the negatives into positives. I just had to stop working because of my seizure activity. I have a vns. It’s helped somewhat. The one thing I see epilepsy as is like the anime NARUTO. Everyone treats you differently because of something you didn’t choose to have, so you just gotta show that you are more than just epileptic.” #dravetsyndrome #epilepsyyouarenotalone #epileptic #invisibleillness #chronicillness #epilepsy #epilepsywarrior #epilepsyawareness #seizures #seizuredisorder

Another epilepsy warrior story! Meet Jesse and his journey with epilepsy! “My name is Jesse and I’ve had epilepsy since I was 15. I’m 27 now. I am a single dad to a 5 year old boy that encourages me everyday to keep going. I’m a big fan of anime and epilepsy has put me through a rollercoaster. From feeling isolated and helpless to being angry and wanting to give up. It’s mostly been a downhill ride. However, I’ve learned to keep my head up and well turn all the negatives into positives. I just had to stop working because of my seizure activity. I have a vns. It’s helped somewhat. The one thing I see epilepsy as is like the anime NARUTO. Everyone treats you differently because of something you didn’t choose to have, so you just gotta show that you are more than just epileptic.”
 #dravetsyndrome #epilepsyyouarenotalone #epileptic #invisibleillness #chronicillness #epilepsy #epilepsywarrior #epilepsyawareness #seizures #seizuredisorder

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2019-06-21 21:49:45

Me invitaron a participar en un proyecto que se llama @loveyourselfmx e inmediatamente dije que SÍ. En esta era de redes sociales, cuerpos perfectos, vidas de película y objetivos inalcanzables, cada día se vuelve más difícil aceptar(me) la versión que a veces únicamente nosotros conocemos. Las inseguridades y los demonios son reales. La falta de aceptación es sinónimo de ansiedad e intranquilidad. Poca gente se atreve a hablar al respecto, porque siempre nos sentimos lo suficientemente vulnerables como para que alguien use este tipo de argumentos en tu contra. El secreto radica en ser TAN consciente de esos defectos, de esos detalles que te hacen única y perfectamente imperfecta, que nadie pueda usarlos para lastimarte. El día que te cansas, que aceptas que así eres, y que esos defectos que tu odias son por los que alguien te ama... entonces habrás entendido todo. Siempre me dijeron que yo podía estar más flaca, que no podía ser rubia, que era muy chaparra, que estaba fea, que por ser nerd no tendría un buen trabajo: guess what. LO LOGRÉ. ✌🏻 “No puedes ofrecer algo que no te das a ti mismo”. Mucho tiempo me costó entenderlo, pero ahora lo veo. Si no me amo yo, si no me acepto yo, si no me cuido, si no me valoro, si me hago menos, si no pongo límites, entonces nadie más lo hará por mí. Amarte es el principio de una relación que durará toda la vida. Es un trabajo diario, en donde habrá días en que odiaras lo que ves en el espejo, pero también habrá días que te recuerden que vales la pena en todos los aspectos porque inspiras, iluminas, brillas, y NADIE te puede quitar eso. ♥️ Gracias @koryanders_93 por hacerme partícipe. Que sean muchas más mujeres las que se atrevan a alzar la voz. ✨ #loveyourselfmx . . . . .

Me invitaron a participar en un proyecto que se llama @loveyourselfmx e inmediatamente dije que SÍ. En esta era de redes sociales, cuerpos perfectos, vidas de película y objetivos inalcanzables, cada día se vuelve más difícil aceptar(me) la versión que a veces únicamente nosotros conocemos. 
Las inseguridades y los demonios son reales. La falta de aceptación es sinónimo de ansiedad e intranquilidad. Poca gente se atreve a hablar al respecto, porque siempre nos sentimos lo suficientemente vulnerables como para que alguien use este tipo de argumentos en tu contra.

El secreto radica en ser TAN consciente de esos defectos, de esos detalles que te hacen única y perfectamente imperfecta, que nadie pueda usarlos para lastimarte. El día que te cansas, que aceptas que así eres, y que esos defectos que tu odias son por los que alguien te ama... entonces habrás entendido todo. Siempre me dijeron que yo podía estar más flaca, que no podía ser rubia, que era muy chaparra, que estaba fea, que por ser nerd no tendría un buen trabajo: guess what. LO LOGRÉ. ✌🏻 “No puedes ofrecer algo que no te das a ti mismo”. Mucho tiempo me costó entenderlo, pero ahora lo veo. Si no me amo yo, si no me acepto yo, si no me cuido, si no me valoro, si me hago menos, si no pongo límites, entonces nadie más lo hará por mí.

Amarte es el principio de una relación que durará toda la vida. Es un trabajo diario, en donde habrá días en que odiaras lo que ves en el espejo, pero también habrá días que te recuerden que vales la pena en todos los aspectos porque inspiras, iluminas, brillas, y NADIE te puede quitar eso. ♥️ Gracias @koryanders_93 por hacerme partícipe. Que sean muchas más mujeres las que se atrevan a alzar la voz. ✨ #loveyourselfmx .
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2019-06-21 21:49:30

🌱 GREENWASHING is the process whereby corporations capitalize upon consumer demand for more natural products by falsely marketing a product as a clean alternative using unregulated buzz words or even green imagery, advertising, and packaging. ⁣ ⁣ 🌱 To separate the wheat from the chaff, we can use the Environmental Working Group (EWG) Skin Deep Database.⁣ ⁣ 🌱 Both of these featured laundry detergent brands are popular among health conscious consumers, but one clearly surpasses the other in terms of an EWG nontoxic rating.⁣ ⁣ 🌱 Seventh Generation has mainstream appeal, and even appears in conventional drug stores and grocery stores.⁣ ⁣ 🌱 However, for this detergent, they rank semi-poorly on EWG’s database. ⁣ ⁣ 🌱 According to EWG, this formulation contains ingredients such as methylisothiazolinone, which is of high concern for acute aquatic toxicity and of some concern for skin irritation/allergies/damage.⁣ ⁣ 🌱 Another ingredient in this detergent, benzoisothiazolinone, has the same health concerns in addition to issues with biodegradation. ⁣ ⁣ 🌱 Isothiazolinones are preservatives used in personal care products and consumer household care products that are strongly linked to an epidemic rise in allergic contact dermatitis.⁣ ⁣ 🌱 Biokleen, on the other hand, is *comparatively* a better alternative.⁣ ⁣ 🌱 Sans artificial fragrance, colors or preservatives, Biokleen uses plant-based surfactants with extracts of citrus and grapefruit seed—which still, by the way, are rated as ingredients of some concern by EWG.⁣ ⁣ 🌱 Among ingredients of concern in this brand is sodium lauryl sulfate, which presents risk of aquatic toxicity, general systemic/organ effects, and acute aquatic toxicity, according to EWG—however, given the choice between this and the other brand, they rank better with this well-reputed nonprofit.⁣ ⁣ 🌱 Another perk is that they actively participate in a reforestation program in Indonesia, and as of March, planted than 130,000 trees there is locales affected by climate change and deforestation.⁣ ⁣ 🌱 This post is not to present the *best* options but to familiarize you with the EWG ranking system and to help you navigate how to decipher labels 👇🏽

🌱 GREENWASHING is the process whereby corporations capitalize upon consumer demand for more natural products by falsely marketing a product as a clean alternative using unregulated buzz words or even green imagery, advertising, and packaging. ⁣
⁣
🌱 To separate the wheat from the chaff, we can use the Environmental Working Group (EWG) Skin Deep Database.⁣
⁣
🌱 Both of these featured laundry detergent brands are popular among health conscious consumers, but one clearly surpasses the other in terms of an EWG nontoxic rating.⁣
⁣
🌱 Seventh Generation has mainstream appeal, and even appears in conventional drug stores and grocery stores.⁣
⁣
🌱 However, for this detergent, they rank semi-poorly on EWG’s database. ⁣
⁣
🌱 According to EWG, this formulation contains ingredients such as methylisothiazolinone, which is of high concern for acute aquatic toxicity and of some concern for skin irritation/allergies/damage.⁣
⁣
🌱 Another ingredient in this detergent, benzoisothiazolinone, has the same health concerns in addition to issues with biodegradation. ⁣
⁣
🌱 Isothiazolinones are preservatives used in personal care products and consumer household care products that are strongly linked to an epidemic rise in allergic contact dermatitis.⁣
⁣
🌱 Biokleen, on the other hand, is *comparatively* a better alternative.⁣
⁣
🌱 Sans artificial fragrance, colors or preservatives, Biokleen uses plant-based surfactants with extracts of citrus and grapefruit seed—which still, by the way, are rated as ingredients of some concern by EWG.⁣
⁣
🌱 Among ingredients of concern in this brand is sodium lauryl sulfate, which presents risk of aquatic toxicity, general systemic/organ effects, and acute aquatic toxicity, according to EWG—however, given the choice between this and the other brand, they rank better with this well-reputed nonprofit.⁣
⁣
🌱 Another perk is that they actively participate in a reforestation program in Indonesia, and as of March, planted than 130,000 trees there is locales affected by climate change and deforestation.⁣
⁣
🌱 This post is not to present the *best* options but to familiarize you with the EWG ranking system and to help you navigate how to decipher labels 👇🏽

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2019-06-21 21:49:14

Done with round 1 of my iron infusions. Feel a little nauseous, tired and have a nasty metallic taste in my mouth. Hopefully the joint pain won't be an issue this time around. #ironinfusion #venofer #venoferinfusion #irondeficiency #eisenmangel #eiseninfusion #chronischkrank #spoonie #spoonielife #chronicillness

Done with round 1 of my iron infusions. Feel a little nauseous, tired and have a nasty metallic taste in my mouth. Hopefully the joint pain won't be an issue this time around. 
 #ironinfusion #venofer #venoferinfusion #irondeficiency #eisenmangel #eiseninfusion #chronischkrank #spoonie #spoonielife #chronicillness

6 2

 
 

2019-06-21 21:48:50

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Today I'm feeling about as dull as this smoothie looks. 😭 Most days I feel tired and fatigued, but can push through enough to kick butt in an exercise class (and am so grateful to sneak in a nap afterward fairly often!). • Today I couldn't push through like usual. It was so frustrating to be in class and recognize from the start that my body wasn't on board. I modified a lot and let myself take breaks even though I didn't want to. I stayed the whole class and did what I could and I know that counts as pushing through too. I showed up. • On the short drive home I contemplated pulling over multiple times, I wasn't sure if I could make it. But I did (phew!). • When I got home all I wanted to do was curl up on the couch, but I rallied myself to make this smoothie first. It's ugly, but it tastes okay and I'm starting to feel a little bit less horrible. Good thing, too, because it's time to get up and get myself to my next appointment for the day. • Mornings like this are a humbling reminder to be grateful for the little things. I am so grateful for the skills I have to help me cope with discomfort and pain, for the moments when my body and mind are on the same page, for ugly smoothies that taste good, and that I showed up today. • What are you grateful for today?

Today I'm feeling about as dull as this smoothie looks.
😭
Most days I feel tired and fatigued, but can push through enough to kick butt in an exercise class (and am so grateful to sneak in a nap afterward fairly often!).
•
Today I couldn't push through like usual. It was so frustrating to be in class and recognize from the start that my body wasn't on board. I modified a lot and let myself take breaks even though I didn't want to. I stayed the whole class and did what I could and I know that counts as pushing through too. I showed up.
•
On the short drive home I contemplated pulling over multiple times, I wasn't sure if I could make it. But I did (phew!).
•
When I got home all I wanted to do was curl up on the couch, but I rallied myself to make this smoothie first. It's ugly, but it tastes okay and I'm starting to feel a little bit less horrible. Good thing, too, because it's time to get up and get myself to my next appointment for the day.
•
Mornings like this are a humbling reminder to be grateful for the little things. I am so grateful for the skills I have to help me cope with discomfort and pain, for the moments when my body and mind are on the same page, for ugly smoothies that taste good, and that I showed up today.
•
What are you grateful for today?

18 7

 
 

2019-06-21 19:19:10

#tbt 2014 The only time the girl child will ever be permitted in a jail cell!!!

 #tbt 2014 The only time the girl child will ever be permitted in a jail cell!!!

10 1

 
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2019-06-21 15:44:23

Happy Friday 💎 . . It’s been a tough health week and I have had really low energy levels. So I decided to book in a treat and get my hair done. It was nice to relax and do a little bit of work.. and I’m loving the new colour 💕(blonde won the hair poll haha).. 😊 . . This was a part of my self care for the week. It’s important to take time for yourself. Whether it’s a hot bath, a long nature walk or getting your nails done. . . Hair: dani_frenchieandco

Happy Friday 💎
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It’s been a tough health week and I have had really low energy levels. So I decided to book in a treat and get my hair done. It was nice to relax and do a little bit of work.. and I’m loving the new colour 💕(blonde won the hair poll haha).. 😊 .
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This was a part of my self care for the week. It’s important to take time for yourself. Whether it’s a hot bath, a long nature walk or getting your nails done. .
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Hair: dani_frenchieandco

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2019-06-21 05:02:45

Even migraines can't stop this hotness. #migraine #migrainessuck #glamourmigraine #hotbitchinshades #chronicillness

Even migraines can't stop this hotness.
 #migraine #migrainessuck #glamourmigraine #hotbitchinshades #chronicillness

1 0

 
 

2015-08-07 02:04:30

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