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#repost @endometriosis007 Still one of the most worrying things I read daily is from warriors being told their pain is all in their head!?! I mean seriously!!!!!!! What of earth makes people think we could or would imagine this pain!! 🤦🏻‍♀️ your pain is real and don't let anyone tell you it isn't! #adenomyosis #fibromyalgiawarrior #adeno #endometriosis #endowarrior #endo007 #endometriosisawareness #endowarriors #1in10 #fibromyalgia #pcos #anixety #warrior #yourpainisreal #believeus #belief #hope #courage #brave #strong #chronicpain #chronicillness #invisibleillness #adenowarrior

 #repost @endometriosis007 Still one of the most worrying things I read daily is from warriors being told their pain is all in their head!?! I mean seriously!!!!!!! What of earth makes people think we could or would imagine this pain!! 🤦🏻‍♀️ your pain is real and don't let anyone tell you it isn't! #adenomyosis #fibromyalgiawarrior #adeno #endometriosis #endowarrior #endo007 #endometriosisawareness #endowarriors #1in10 #fibromyalgia #pcos #anixety #warrior #yourpainisreal #believeus #belief #hope #courage #brave #strong #chronicpain #chronicillness #invisibleillness #adenowarrior

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2019-04-12 21:17:08

33Fusion by Samareign, be a part of the creative future trade marks. Photography by samareign (pls consent to avoid copyright violations) if u ❤️Allah and believe in justice and the massage of Islam be 1st 2 join the wave 🌊&follow. “I made it, through another routine upper endoscopy, colonoscopy 🤛🏾🤛🏾🤛🏾🙌🏾🙌🏾”. Pls stay toned for my upcoming Gastroparesis blogs, and crowdfunding campaign for my natural treatment with zero side affects Also pls support the movement and Follow me. Love and respect ❤️❤️❤️❤️ " #sixsidedcanvas #samareign #33fusion #allah #light #gastroparesis #gastroparesisawareness #gastroparesissucks #gastroparesissucks #chronicpain #islam #islamicjustice #usaislam #international #chronicillness #muslimah #chronicdisease #chronicillnessartist #raredisease #artistwithdisability #world #pain #life #knowledge #treatment #mural #colors #cure #herbaltreatment #artistsoninstagram #art

33Fusion by Samareign, be a part of the creative future trade marks. Photography by samareign (pls consent to avoid copyright violations) if u ❤️Allah and believe in justice and the massage of Islam be 1st 2 join the wave 🌊&follow. “I made it, through another routine upper endoscopy, colonoscopy 🤛🏾🤛🏾🤛🏾🙌🏾🙌🏾”. Pls stay toned for my upcoming Gastroparesis blogs, and crowdfunding campaign for my natural treatment with zero side affects Also pls support the movement and Follow me. Love and respect ❤️❤️❤️❤️ " #sixsidedcanvas #samareign #33fusion #allah #light #gastroparesis #gastroparesisawareness #gastroparesissucks #gastroparesissucks #chronicpain #islam #islamicjustice #usaislam #international #chronicillness #muslimah #chronicdisease #chronicillnessartist #raredisease #artistwithdisability #world  #pain #life  #knowledge  #treatment #mural #colors #cure #herbaltreatment #artistsoninstagram #art

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2019-04-12 21:16:36

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New post inspired by your stories, as well as a turn I will be taking on the podcast the next couple of weeks: ... ... “When I got sick I blamed my body: my bad, evil, fleshly body. How dare it do this to me? I found ways to reconnect with myself, under the pain and, quite frankly, separate from my body. ... ... My soul felt safe, so I poured into it, and, while this was certainly not time wasted, because in all of that I found a part of myself that pain holds no bearing, I also forgot about other aspects of self that I am only coming back to now. ... ... Only now, as I heal in new ways, am I finding I can no longer ignore my body. I’m learning to listen to it, to let myself drift out of my head and into those blood pumping, air breathing, light sensing parts of myself.” ... ... 👆STOP SHAMING YOUR BODY AND START LISTENING TO IT (new post at CallieDixon.com — link in bio) ... ... ... ... ... ... ... ... ... ... ... ... ... ... #bodyshame #shame #bodypositive #chronicillness #interstitialcystitis #IC #heal #healing #hopeforhealing #spoonie #spoonies #encouragement #hope #justkeepswimming #keepgoing #ikeepgoing #instagood #instahope #inspiration #inspired #writing #writingblog #writersofinstagram #chronicblogs #invisibleillness #butyoudontlooksick

New post inspired by your stories, as well as a turn I will be taking on the podcast the next couple of weeks:
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“When I got sick I blamed my body: my bad, evil, fleshly body. How dare it do this to me? I found ways to reconnect with myself, under the pain and, quite frankly, separate from my body.
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My soul felt safe, so I poured into it, and, while this was certainly not time wasted, because in all of that I found a part of myself that pain holds no bearing, I also forgot about other aspects of self that I am only coming back to now. ...
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Only now, as I heal in new ways, am I finding I can no longer ignore my body. I’m learning to listen to it, to let myself drift out of my head and into those blood pumping, air breathing, light sensing parts of myself.”
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👆STOP SHAMING YOUR BODY AND START LISTENING TO IT (new post at CallieDixon.com — link in bio)
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 #bodyshame #shame #bodypositive #chronicillness #interstitialcystitis #IC #heal #healing #hopeforhealing #spoonie #spoonies #encouragement #hope #justkeepswimming #keepgoing #ikeepgoing #instagood #instahope #inspiration #inspired #writing #writingblog #writersofinstagram #chronicblogs #invisibleillness #butyoudontlooksick

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2019-04-12 21:16:17

I can’t get enough of this page, she literally explains exactly what I’ve been trying to say to friends and family or just people in general that can’t seem to understand mental illness. It’s not a choice.. I didn’t choose to become depressed or have anxiety. Posted @withrepost • @crazyheadcomics i think that some people underestimate the amount of effort it takes to navigate the world as a mentally ill person. especially if you have several diagnoses, as many of us have. speaking from personal experience, it’s honestly really hard to function day to day, and it can take a lot of effort to simply “appear” like everything is cool all the time. i can be in public or with friends and all the sudden, i feel dissociated, or anxious, or get racing thoughts, or something else that’s a product of my mental illness(es) and it’s hard to keep it together. but i’m trying. we cannot contain and control our symptoms all the time. we are not trying to ruin the mood, we’re not trying to get attention, we’re not choosing to display symptoms of mental illness. we wish we could be normal, and function, and be happy all the time, but we simply cannot. our symptoms are not decisions, we didn’t choose to be mentally ill. we are just trying to make our way through a world that wasn’t made for us, a world that often punish us for our illness, a world of people who doesn’t understand why we “have to act that way”, or why we “can’t just be normal”. it’s a disorder, not a decision. we aren’t choosing to be ill. • • • #mentalhealth #mentalillness #mentalhealthawareness #psynligt #nostigma #mentalhealthwarrior #recovery #schizophrenia #eatingdisorders #bulimia #anorexia #ptsd #borderline #bpd #ocd #bipolar #bipolardisorder #anxiety #depression #pain #chronicillness #adhd #art #digitalart #artistsoninstagram #comic #crazyheadcomics

I can’t get enough of this page, she literally explains exactly what I’ve been trying to say to friends and family or just people in general that can’t seem to understand mental illness. It’s not a choice.. I didn’t choose to become depressed or have anxiety. Posted @withrepost • @crazyheadcomics i think that some people underestimate the amount of effort it takes to navigate the world as a mentally ill person. especially if you have several diagnoses, as many of us have. speaking from personal experience, it’s honestly really hard to function day to day, and it can take a lot of effort to simply “appear” like everything is cool all the time. i can be in public or with friends and all the sudden, i feel dissociated, or anxious, or get racing thoughts, or something else that’s a product of my mental illness(es) and it’s hard to keep it together. but i’m trying. we cannot contain and control our symptoms all the time. we are not trying to ruin the mood, we’re not trying to get attention, we’re not choosing to display symptoms of mental illness. we wish we could be normal, and function, and be happy all the time, but we simply cannot. our symptoms are not decisions, we didn’t choose to be mentally ill. we are just trying to make our way through a world that wasn’t made for us, a world that often punish us for our illness, a world of people who doesn’t understand why we “have to act that way”, or why we “can’t just be normal”. it’s a disorder, not a decision. we aren’t choosing to be ill. •
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 #mentalhealth #mentalillness #mentalhealthawareness #psynligt #nostigma #mentalhealthwarrior #recovery #schizophrenia #eatingdisorders #bulimia #anorexia #ptsd #borderline #bpd #ocd #bipolar #bipolardisorder #anxiety #depression #pain #chronicillness #adhd #art #digitalart #artistsoninstagram #comic #crazyheadcomics

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2019-04-12 21:15:25

Sea zoo 🐟🐠🐡🦀🦐🐚 the crab was so emo 😂 #mswarrior #mscansuckit #fums #spoonie #chronicillness #wheelchair #wheelchairlife #wheelchairwarrior #wheelchairfitness #lgbtspoonies #lgbtq #girlswhokissgirls #instalesbians #emocrab #seazoo #angleseaseazoo

Sea zoo 🐟🐠🐡🦀🦐🐚 the crab was so emo 😂 #mswarrior #mscansuckit #fums #spoonie #chronicillness #wheelchair #wheelchairlife #wheelchairwarrior #wheelchairfitness #lgbtspoonies #lgbtq #girlswhokissgirls #instalesbians #emocrab #seazoo #angleseaseazoo

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2019-04-12 21:15:01

That glorious feeling when you get to take the needle out of your chest after a week of IV. Though I only get a short break, as I have to be reaccessed for my weekly treatments, those few needle free moments are cherished! #foryourinformation A port-a-cath is a central line, meaning a needle access point attached to a tube that goes directly into a large artery and is threaded into your heart. It is often used for patients who have frequent IV treatments or treatments that that to go into a larger vein (like chemo). I usually have a needle in my port to do my IV treatments 5 times a week. My port-a-cath is the Bard Power Port in case you want to look it up to see how it fits in a body. #accessibility #photodescription [Sarah smiling at the camera pointing to her port-a-cath in her chest that has no needle inserted.] #freedom #portacath #portneedle #deaccessingmyport #chronicillnesswarrior #chronicpainwarrior #chronicillness #chronicpain #ehlersdanlossyndrome #zebrastrong #dysautonomia #posturalorthostatictachycardiasyndrome #spoonie #chronicallyextraordinary

That glorious feeling when you get to take the needle out of your chest after a week of IV. Though I only get a short break, as I have to be reaccessed for my weekly treatments, those few needle free moments are cherished!

 #foryourinformation A port-a-cath is a central line, meaning a needle access point attached to a tube that goes directly into a large artery and is threaded into your heart. It is often used for patients who have frequent IV treatments or treatments that that to go into a larger vein (like chemo). I usually have a needle in my port to do my IV treatments 5 times a week. My port-a-cath is the Bard Power Port in case you want to look it up to see how it fits in a body.

 #accessibility #photodescription [Sarah smiling at the camera pointing to her port-a-cath in her chest that has no needle inserted.] #freedom #portacath #portneedle #deaccessingmyport #chronicillnesswarrior #chronicpainwarrior #chronicillness #chronicpain 
 #ehlersdanlossyndrome #zebrastrong #dysautonomia #posturalorthostatictachycardiasyndrome #spoonie #chronicallyextraordinary

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2019-04-12 21:14:55

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#bii #breastimplantillness #breastimplantillnessawareness #dying #pain #suffering #fibromyalgia #chronicillness #chronicpain #chronicfatiguesyndrome #toxicbags #toxicbreastimplants #toxicchemicals #toxicimplants

 #bii #breastimplantillness #breastimplantillnessawareness #dying #pain #suffering #fibromyalgia #chronicillness #chronicpain #chronicfatiguesyndrome #toxicbags #toxicbreastimplants #toxicchemicals #toxicimplants

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2019-04-12 21:14:09

The radiation center where I have spent every week day for the past 21 days had a surprise for me this morning. Baloo has been coming with me many days and is the (very unofficial) mascot for the center — it’s his favorite place to go, he wags his tail as soon as he gets out of the car. I can’t put into words how grateful I am for the staff here. They have made an excruciating process feel easy & I actually look forward to going each day just to see them. So so filled with gratitude today. With love, Caroline & @baloo.and.mowgli

The radiation center where I have spent every week day for the past 21 days had a surprise for me this morning. Baloo has been coming with me many days and is the (very unofficial) mascot for the center — it’s his favorite place to go, he wags his tail as soon as he gets out of the car. I can’t put into words how grateful I am for the staff here. They have made an excruciating process feel easy & I actually look forward to going each day just to see them. So so filled with gratitude today. 
With love, Caroline & @baloo.and.mowgli

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2019-04-12 21:13:44

#training #weighttraining #weightlifting #weights #trainingday #traininghard #powerlifting #strength #support #strongman #strongwomen #fitness #fitnessmotivation #fitnesslifestyle #fitnessjourney #fitnesslife #gym #gymmotivation #gymlife #fibromyalgiaawareness #fibrowarrior #bodypositive #bodygoals #bodytransformation #chronicillness #fibrofighter #mentalstrength  #motivation #fibromyalgia #motivationalquotes

 #training #weighttraining #weightlifting #weights #trainingday #traininghard #powerlifting #strength #support #strongman #strongwomen #fitness #fitnessmotivation #fitnesslifestyle #fitnessjourney #fitnesslife #gym #gymmotivation #gymlife #fibromyalgiaawareness #fibrowarrior #bodypositive #bodygoals #bodytransformation #chronicillness #fibrofighter #mentalstrength  #motivation #fibromyalgia #motivationalquotes

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2019-04-12 21:13:00

Im looking forward to this! Not that im biased in any way.... 🙈😂 in all seriousness though, every single sample looks entirely unique, are every colour imaginable, have a variety of techniques used and all have different textures. Definitely worth a peek! 😉 Do checkout the Scottish Mental Health Arts Festival brochure at https://www.mhfestival.com and see what else is on throughout May #love #life #newskills #lifeskills #weaving #feelingthroughlife #textiles #design #artsandcrafts #artsandcraftsformentalhealth #empowerment #endstigma #startaconversation #timetotalk #awareness #spreadingawareness #paisley #paisleyheritage #chronicillness #chronicpain #lifewithfibromyalgia #lifeofaspoonie #mentalhealthawareness #mentalhealth #connections #supportnetwork #selfcare #selfmanagement #selfmanagementtools #creativity

Im looking forward to this! Not that im biased in any way.... 🙈😂 in all seriousness though, every single sample looks entirely unique, are every colour imaginable, have a variety of techniques used and all have different textures. Definitely worth a peek! 😉 Do checkout the Scottish Mental Health Arts Festival brochure at https://www.mhfestival.com and see what else is on throughout May #love #life #newskills #lifeskills #weaving #feelingthroughlife #textiles #design #artsandcrafts #artsandcraftsformentalhealth #empowerment #endstigma #startaconversation #timetotalk #awareness #spreadingawareness #paisley #paisleyheritage #chronicillness #chronicpain #lifewithfibromyalgia #lifeofaspoonie #mentalhealthawareness #mentalhealth #connections #supportnetwork #selfcare #selfmanagement #selfmanagementtools #creativity

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2019-04-12 21:12:36

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T H E M O U N T A I N // I think this is my favourite line - it’s so important to rest & not berate yourself for it. Look after you. #thenountainpoem #rainbirdroots #lauradingedwards #quotesforher #lookafteryourself #mentalhealth #mentalhealthawareness #mentalhealthquotes #mentalillness #mentalhealthsupport #stopthestigma #restdontquit #takecare #mindfulliving #mindfulness #mindfullife #onlyhuman #depression #anxiety #bipolar #cfs #fibromyalgia #fibrowarrior #chronicillness #warrior

T H E M O U N T A I N // I think this is my favourite line - it’s so important to rest & not berate yourself for it. Look after you. #thenountainpoem #rainbirdroots #lauradingedwards #quotesforher #lookafteryourself #mentalhealth #mentalhealthawareness #mentalhealthquotes #mentalillness #mentalhealthsupport #stopthestigma #restdontquit #takecare #mindfulliving #mindfulness #mindfullife #onlyhuman #depression #anxiety #bipolar #cfs #fibromyalgia #fibrowarrior #chronicillness #warrior

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2019-04-12 21:12:19

This is how we feel understood. This is how we feel supported. This is how we feel validated. This is everything. 🙏🏼 #chronicpainwarrior • • ✏: @brenebrown

This is how we feel understood. This is how we feel supported. This is how we feel validated. This is everything. 🙏🏼 #chronicpainwarrior
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✏: @brenebrown

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2019-04-12 21:11:59

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Have you Soared Over the World lately? This is one of my favorite rides! 😁⁣ ⁣ ♿ This ride DOES require you to be able to transfer from a wheelchair in order to get on the ride. The cast members do allow you to pull right up to the seat of the ride and transfer, and they will move your wheelchair or mobility device out of the way of the ride (about 2-3 feet from you). When the ride is over, the cast member will bring your wheelchair over to you if needed or at your request. ⁣ ⁣ If you are able to transfer or have a companion who can help you transfer, I highly recommend this ride! 💕🏰🎡👍⁣ ⁣ #disney #disneyland #disneyblogger #disneyblog #disneyaddict #disneylove #disneymagic #disneyfanatic #mickeymouse #pixarpier #wheelchair #spoonie #lifeonwheels #soaringovertheworld #wheelchairuser #musculardystrophy #chronicillness #disabilityawareness #accessibledisneylanddreams #invisibleillness #disneylife #disneyliving #nevergiveup #disabilitytravel #wheelchairtravel

Have you Soared Over the World lately? This is one of my favorite rides! 😁⁣
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♿ This ride DOES require you to be able to transfer from a wheelchair in order to get on the ride. The cast members do allow you to pull right up to the seat of the ride and transfer, and they will move your wheelchair or mobility device out of the way of the ride (about 2-3 feet from you). When the ride is over, the cast member will bring your wheelchair over to you if needed or at your request. ⁣
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If you are able to transfer or have a companion who can help you transfer, I highly recommend this ride! 💕🏰🎡👍⁣
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 #disney #disneyland #disneyblogger #disneyblog #disneyaddict #disneylove #disneymagic #disneyfanatic #mickeymouse #pixarpier #wheelchair #spoonie #lifeonwheels #soaringovertheworld #wheelchairuser #musculardystrophy #chronicillness #disabilityawareness #accessibledisneylanddreams #invisibleillness #disneylife #disneyliving #nevergiveup #disabilitytravel #wheelchairtravel

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2019-04-12 21:11:42

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When trying to be the best version on yourself you must take care of every aspect of your body. It will not help you if you live 100 years but you can’t remember what your grandsons name. So make sure you also take good care of your brain. . Some proven techniques for maintaining a healthy brain are: . Meditation, Nutrition, Reading, Learning something new all the time. . . What’s you favorite way to train your brain? . . . #brainhealth #mentalhealth #fitness #health #shareyourstrong #love #grace #georgia #nevergiveup #guthealth #wellness #atlanta #nutrition #healthy #chronicillness #brain #strength #yoga #fit #vitamins #muscle #meditation #plantbased #peace #healthylifestyle #survivor #integrity #braininjuryadvisorycouncil #holistichealth #focus

When trying to be the best version on yourself you must take care of every aspect of your body. It will not help you if you live 100 years but you can’t remember what your grandsons name. So make sure you also take good care of your brain.
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Some proven techniques for maintaining a healthy brain are:
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Meditation, Nutrition, Reading, Learning something new all the time.
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 #brainhealth #mentalhealth #fitness #health #shareyourstrong #love #grace #georgia #nevergiveup #guthealth #wellness #atlanta #nutrition #healthy #chronicillness #brain #strength #yoga #fit #vitamins #muscle #meditation #plantbased #peace #healthylifestyle #survivor #integrity #braininjuryadvisorycouncil #holistichealth #focus

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2019-04-12 21:11:12

Time to kick off #twtcountdownchallenge Day 1 🎉 Super excited to be apart of the countdown and ready to see what all of you other creators have made to celebrate this tremendous achivement by the @theweedtube team! They've created a home where cannabis creators are celebrated and not stigmatized. I hope you like what I have in store, kicking off today with a little plant tour 🌱🌿 Link in bio #cannabis #theweedtube #weedtuber #mmj #medicalcannabis #medicalmarijuana #cannabiscommunity #plants #chronicillness #chronickryoatics #highsociety #stoner #bong #bongrips #twt #promo #selfpromo #marijuana #invisibleillness #videocreator

Time to kick off #twtcountdownchallenge Day 1 🎉

Super excited to be apart of the countdown and ready to see what all of you other creators have made to celebrate this tremendous achivement by the @theweedtube team! They've created a home where cannabis creators are celebrated and not stigmatized.

I hope you like what I have in store, kicking off today with a little plant tour 🌱🌿
Link in bio

 #cannabis #theweedtube #weedtuber #mmj #medicalcannabis #medicalmarijuana #cannabiscommunity #plants #chronicillness #chronickryoatics #highsociety #stoner #bong #bongrips #twt #promo #selfpromo #marijuana #invisibleillness #videocreator

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2019-04-12 21:10:36

It all makes sense now! 🤣

It all makes sense now! 🤣

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2019-04-12 21:10:25

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DONE! This may look small, but it’s not lolol 😂 my arms hurt and my shoulders are burning. But project numero uno done in sync with @rtartdesigns is complete (hers is up to, so go look!) Love that we chose two different sizes and mediums to complete our work, but still we had the same frustration on the feather details of how to work them out. We also chose to fill in similar additional purple bits deviating from the source photograph a bit (we’ve got a joint @pinterest board for subject ideas!) Great minds think alike even across oceans! 💡 🧠 🎨 . . . . . . . . . . . . #psychedelicart #emergingartist #contemporaryart #painteveryday #artstudio #gayart #popsurrealism #makearteveryday #processart #geometricart #springtime #njart #njartist #springart #aestheticart #calledtobecreative #lgbtqia #chronicillness #acrylicpaint #womenartists #birdpainting #feministart #imaginariumarts #artsagram #neonart

DONE! This may look small, but it’s not lolol 😂 my arms hurt and my shoulders are burning. But project numero uno done in sync with @rtartdesigns is complete (hers is up to, so go look!) Love that we chose two different sizes and mediums to complete our work, but still we had the same frustration on the feather details of how to work them out. We also chose to fill in similar additional purple bits deviating from the source photograph a bit (we’ve got a joint @pinterest board for subject ideas!) Great minds think alike even across oceans! 💡 🧠 🎨
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 #psychedelicart #emergingartist 
 #contemporaryart #painteveryday 
 #artstudio #gayart #popsurrealism #makearteveryday #processart #geometricart #springtime #njart #njartist  #springart #aestheticart #calledtobecreative #lgbtqia #chronicillness #acrylicpaint #womenartists #birdpainting #feministart #imaginariumarts #artsagram #neonart

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2019-04-12 21:10:23

South Bank, London 🇬🇧

South Bank, London 🇬🇧

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2019-04-12 21:10:20

Ugh! Today is a write off. First migraine in a long time has broken me in to pieces. Been in a cold dark room for hours, about to neck some pain relief and smother my forehead in tiger balm and hopefully feel well enough to watch Drag Race...resuming normal activity tomorrow... #endometriosis #endometriosisawarenessmonth #endometriosisawareness #periodproblems #period #periodpositive #fibroids #pcos #pcosawareness #adenomyosis #pelvicinflammatorydisease #periodcramps #girlpower #chronicpain #chronicillness #fibroidawareness #endo #mentalhealthawareness #migraineawareness #illustration #illustrator #portrait #youngartist #artistsoninstagram #artistsofinstagram

Ugh! Today is a write off. First migraine in a long time has broken me in to pieces. Been in a cold dark room for hours, about to neck some pain relief and smother my forehead in tiger balm and hopefully feel well enough to watch Drag Race...resuming normal activity tomorrow... #endometriosis #endometriosisawarenessmonth #endometriosisawareness #periodproblems #period #periodpositive #fibroids #pcos #pcosawareness #adenomyosis #pelvicinflammatorydisease #periodcramps #girlpower #chronicpain #chronicillness #fibroidawareness #endo #mentalhealthawareness #migraineawareness #illustration #illustrator #portrait #youngartist #artistsoninstagram #artistsofinstagram

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2019-04-12 21:09:30

#Repost @meme_the_sick_away (@get_repost) ・・・ Relatable. Follow @meme_the_sick_away for more posts like this #💗🦄 . . . #chronicpain #anxiety #fibromyalgia #ehlersdanlossyndrome #spoonie  #chronicillness #chronicfatigue #EDS #mentalhealthawareness #migraine #ehlersdanlossyndromeawareness #exhausted #cfs #fibrowarrior #fibrofighter #exhausted

 #Repost @meme_the_sick_away (@get_repost)
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Relatable. Follow @meme_the_sick_away for more posts like this #💗🦄
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 #chronicpain #anxiety #fibromyalgia #ehlersdanlossyndrome #spoonie  #chronicillness #chronicfatigue #EDS #mentalhealthawareness #migraine #ehlersdanlossyndromeawareness #exhausted #cfs #fibrowarrior #fibrofighter #exhausted

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2019-04-12 21:08:59

33Fusion by Samareign, be a part of the creative future trade marks. Photography by samsreign (pls consent to avoid copyright violations) if u ❤️Allah and believe in justice and the massage of Islam be 1st 2 join the wave 🌊&follow. “Gastroparesis is an uphill battle, but we learnt to persevere there is a light 💡 in the end of the tunnel ❤️❤️❤️”. Pls stay toned for my upcoming Gastroparesis blogs, and crowdfunding campaign for my natural treatment with zero side affects Also pls support the movement and Follow me. Love and respect ❤️❤️❤️❤️ " #sixsidedcanvas #samareign #33fusion #allah #hope #gastroparesis #gastroparesisawareness #gastroparesissucks #gastroparesissucks #chronicpain #islam #islamicjustice #usaislam #international #chronicillness #muslimah #chronicdisease #chronicillnessartist #raredisease #artistwithdisability #world #pain #life #knowledge #treatment #mural #colors #cure #herbaltreatment #artistsoninstagram #art

33Fusion by Samareign, be a part of the creative future trade marks. Photography by samsreign (pls consent to avoid copyright violations) if u ❤️Allah and believe in justice and the massage of Islam be 1st 2 join the wave 🌊&follow. “Gastroparesis is an uphill battle, but we learnt to persevere there is a light 💡 in the end of the tunnel ❤️❤️❤️”. Pls stay toned for my upcoming Gastroparesis blogs, and crowdfunding campaign for my natural treatment with zero side affects Also pls support the movement and Follow me. Love and respect ❤️❤️❤️❤️ " #sixsidedcanvas #samareign #33fusion #allah  #hope #gastroparesis #gastroparesisawareness #gastroparesissucks #gastroparesissucks #chronicpain #islam #islamicjustice #usaislam #international #chronicillness #muslimah #chronicdisease #chronicillnessartist #raredisease #artistwithdisability #world  #pain #life  #knowledge  #treatment #mural #colors #cure #herbaltreatment #artistsoninstagram #art

7 0

 
 

2019-04-12 21:07:35

#canada #snow #snowangel #snowdog #truenorth #curebs #blausyndrome #juvenilearthritis #sarcoidosis #findacure #animaltherapy #chronicillness #chronicpain

 #canada #snow #snowangel #snowdog #truenorth #curebs #blausyndrome #juvenilearthritis #sarcoidosis #findacure #animaltherapy #chronicillness #chronicpain

3 0

 
 

2019-04-12 21:07:04

I was over it already. ❌Tired of being sick..😷 ❌Tired of being fat...🐽 ❌Tired of not feeling or looking like myself...😱😱 ❌Tired of being TIRED. 😵😵😵 "Just take these pills." Said one Doc.. "And take these, too." She said.. 💊⚖💉💊⚖💉 Meanwhile, my body (and me I might add) cried out desperately for relief..for solutions...😵🤯🤯🤯🤯🤯 For answers.. Like 1) How does this happen to me when I was generally already fit and healthy? 2) What do you MEAN there's no cure, but only treatment? So just take these pills indefinitely? Like forever?? AND still be SICKER..FATTER..AND EVEN MOOOORE TIRED? How about NAH.✋✋✋✋✋ The fact that 80% of Autoimmune Disease diagnoses are women makes my stomach turn.🤢🤢 The fact that the the diagnoses are increasing much faster in the US makes me a little angry as well.. 🤬🤬🤬🤬🤬🤬 The fact that traditional MDs are more interested in making sure your script is refilled rather than bringing you back to a Healthy Life is concerning.. When I asked one doctor if my weight will just continue to balloon, she said.. "Stop getting on the scale."😳😳😳 Thank GOD that there are things we can do to speed up our healing, both physically and mentally.🙏🙏🙏🙏🙏 I DID IT.🧘‍♀️ And can show you how to. Psssssst...👂👂👂👂 The initial 30 Pounds was just icing on the cake! ***DM me for more info about: "30 Pounds and Counting"***

I was over it already.
❌Tired of being sick..😷
❌Tired of being fat...🐽
❌Tired of not feeling or looking like myself...😱😱
❌Tired of being TIRED.
😵😵😵 "Just take these pills." Said one Doc..
"And take these, too." She said..
💊⚖💉💊⚖💉 Meanwhile, my body (and me I might add) cried out desperately for relief..for solutions...😵🤯🤯🤯🤯🤯 For answers.. Like 1) How does this happen to me when I was generally already fit and healthy? 
2) What do you MEAN there's no cure, but only treatment?

So just take these pills indefinitely? Like forever?? AND still be SICKER..FATTER..AND EVEN MOOOORE TIRED?

How about NAH.✋✋✋✋✋ The fact that 80% of Autoimmune Disease diagnoses are women makes my stomach turn.🤢🤢 The fact that the the diagnoses are increasing much faster in the US makes me a little angry as well..
🤬🤬🤬🤬🤬🤬 The fact that traditional MDs are more interested in making sure your script is refilled rather than bringing you back to a Healthy Life is concerning.. When I asked one doctor if my weight will just continue to balloon, she said..
"Stop getting on the scale."😳😳😳 Thank GOD that there are things we can do to speed up our healing, both physically and mentally.🙏🙏🙏🙏🙏 I DID IT.🧘‍♀️
And can show you how to.
Psssssst...👂👂👂👂 The initial 30 Pounds was just icing on the cake! ***DM me for more info about:
"30 Pounds and Counting"***

5 2

 
 

2019-04-12 21:06:34

Milk thistle has really helped me! It gently detoxes the liver while speeding up organ repair. It treats fungal infections and is good for the skin .✨ It’s especially important to take care of your liver when taking pharmaceuticals. I plan to use this after I finish my last round of medicine P.s - this isn’t an ad or sponsored, I just love this vitamin brand 💓

Milk thistle has really helped me! It gently detoxes the liver while speeding up organ repair. It treats fungal infections and is good for the skin .✨ It’s especially important to take care of your liver when taking pharmaceuticals. I plan to use this after I finish my last round of medicine 
P.s - this isn’t an ad or sponsored, I just love this vitamin brand 💓

14 1

 
 

2019-04-12 21:06:16

Second PT appointment in the books! I had dry needling to release some crazy knotted trigger points, and kinesio taping to help hold my shoulder in place and keep it from subluxing constantly and pulling on the nerves. Hopefully this will help me sleep without waking up with my arm numb and aching. 🤞 . I also tried kratom for the first time, since hearing miracle stories about it in the EDS support groups. . So, all in all, a super encouraging day! 😄 What a great way to enter the weekend! I hope you all are having a lovely Friday as well! . . . #kttape #kinesiotape #athletictape #physicaltherapy #dryneedling #rawmotherhood #candidmotherhood #copingstrategies #naturalpainrelief #painrelief #eds #hEDS #ehlersdanlos #ehlersdanlossyndrome #geneticdisorder #chronicpain #chronicfatigue #chronicillness #invisibleillness #chronicallyill #spoonie #spoonielife #spoonies #zebrastrong #pain #hypermobility #edsawareness #honestlymothering #messy_motherhood #mentalhealth

Second PT appointment in the books! I had dry needling to release some crazy knotted trigger points, and kinesio taping to help hold my shoulder in place and keep it from subluxing constantly and pulling on the nerves. Hopefully this will help me sleep without waking up with my arm numb and aching. 🤞
.
I also tried kratom for the first time, since hearing miracle stories about it in the EDS support groups.
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So, all in all, a super encouraging day! 😄 What a great way to enter the weekend! I hope you all are having a lovely Friday as well!
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 #kttape #kinesiotape #athletictape #physicaltherapy #dryneedling #rawmotherhood #candidmotherhood #copingstrategies #naturalpainrelief #painrelief  #eds #hEDS #ehlersdanlos #ehlersdanlossyndrome #geneticdisorder #chronicpain #chronicfatigue #chronicillness #invisibleillness #chronicallyill #spoonie #spoonielife #spoonies #zebrastrong #pain #hypermobility #edsawareness #honestlymothering #messy_motherhood #mentalhealth

3 0

 
 

2019-04-12 21:06:12

Mom and I went to #Qdoba today before her tax appointment and got her favorite 3 Cheese Chicken Nacho. We are addicts of @qdoba and frequent the store when mom is craving a good Nacho. Now we’re just paitently waiting until its time for our tax appointment. We were at the library for about two hours and then came here. Life is good ❤️ • • Meet our Pawtners!: * @doc.the.sd * @Service_Squish * @boxer_pawz • • Tags: #ServiceDog #MedicalAlert #ChronicIllness #ServiceDogsOfMichigan #PTSD #AnxietyDisorder #CysticFibrosis #LiverDisease #PrimaryBilinaryCirhosis #LiverFibrosis #PepticUlcerDisease #IBS #VanishingBileductSyndrome #SevereEndomitriosis #AdoptDontShop #AdoptADogSaveALife #Pointer #Boxer #Whippet

Mom and I went to #Qdoba today before her tax appointment and got her favorite 3 Cheese Chicken Nacho. We are addicts of @qdoba and frequent the store when mom is craving a good Nacho. Now we’re just paitently waiting until its time for our tax appointment. 
We were at the library for about two hours and then came here. Life is good ❤️
•
•
Meet our Pawtners!:
* @doc.the.sd
* @Service_Squish
* @boxer_pawz
•
•
Tags: 
 #ServiceDog #MedicalAlert #ChronicIllness #ServiceDogsOfMichigan #PTSD #AnxietyDisorder #CysticFibrosis #LiverDisease #PrimaryBilinaryCirhosis #LiverFibrosis #PepticUlcerDisease #IBS #VanishingBileductSyndrome #SevereEndomitriosis  #AdoptDontShop #AdoptADogSaveALife #Pointer #Boxer #Whippet

0 0

 
 

2019-04-12 21:05:40

I’m in love with this skirt and I don’t care who knows it 💋

I’m in love with this skirt and I don’t care who knows it 💋

8 1

 
 

2019-04-12 21:04:59

Bad day/pain days/sick days - whatever you want to call them... they have gotten a whole lot easier! Laying in my little zen room with my best girl listening to the birds singing, the gentle breeze whispering, and the wind chimes dancing, how could I possibly not feel at peace? #zen #peace #joy #birds #wind #breeze #nature #sickday #dogsofcalifornia #rest #chronicillness #servicedog #EDS #kanarain #germanshepherd #mastiff #invisibleillness

Bad day/pain days/sick days - whatever you want to call them... they have gotten a whole lot easier! Laying in my little zen room with my best girl listening to the birds singing, the gentle breeze whispering, and the wind chimes dancing, how could I possibly not feel at peace? 
 #zen #peace #joy #birds #wind #breeze #nature #sickday #dogsofcalifornia #rest #chronicillness #servicedog #EDS #kanarain #germanshepherd #mastiff #invisibleillness

4 0

 
 

2019-04-12 21:04:52

“see your post from 2 years ago today”⁣ ⁣ I’m so grateful to see this pop up today. ⁣ ∘⁣ I remember being reduced to tears on the journey home through the sheer and utter exhaustion and pain. Then when I finally did get home, collapsing into bed and just sobbing from the experience. ⁣ No one ‘bad’ thing happened a such. It was the physical & emotional toll of having this altered life, putting all of my hope into the hands of others and everything feeling so completely out of my control. ⁣ ∘⁣ Being told the illness/syndrome/disease you have is chronic, incurable and life long, massively messes with your psyche. You don’t just stay the same person, with an illness added. It spreads throughout like a wildfire leaving nothing unscathed. Every single part of you is touched by it.⁣ ∘⁣ I personally carry around a tremendous amount of guilt, shame and constant sense of being ‘less than’, a lesser daughter/partner/person, than I ‘should’ be. For a very long time I accepted that I should actually be feeling this way, because my illnesses changed me in those very ways. How could they not? ⁣ ∘⁣ We tend to identify who we are, with what we know. I am questioning all I ‘know’, picking apart it all, and trying to nurture it and grow again. ⁣ ∘⁣ I’m almost reluctant to talk about how well i’ve been doing these past few months, and I’m struggling pinpoint why. Like as if saying it out loud puts it out into the universe, and then... i’ll jinx it? I don’t know, it’s hard to articulate. It’s almost a feeling as if it’s too good to be true, so don’t say anything otherwise it’ll come back to bite you on the butt? I think I am still in shock that my health is moving in the right direction for the first time in 10 years. Sure i’ve had ‘good’ periods in that time, but they were not sustainable. All leading me into a prolonged worsen state, and there is a part of me that is terrified it’ll happen again. ⁣ ∘⁣ (ya this is a long one, i’m carrying on down below!)

“see your post from 2 years ago today”⁣
⁣
I’m so grateful to see this pop up today. ⁣
∘⁣
I remember being reduced to tears on the journey home through the sheer and utter exhaustion and pain. Then when I finally did get home, collapsing into bed and just sobbing from the experience. ⁣
No one ‘bad’ thing happened a such. It was the physical & emotional toll of having this altered life, putting all of my hope into the hands of others and everything feeling so completely out of my control. ⁣
∘⁣
Being told the illness/syndrome/disease you have is chronic, incurable and life long, massively messes with your psyche. You don’t just stay the same person, with an illness added. It spreads throughout like a wildfire leaving nothing unscathed. Every single part of you is touched by it.⁣
∘⁣
I personally carry around a tremendous amount of guilt, shame and constant sense of being ‘less than’, a lesser daughter/partner/person, than I ‘should’ be. For a very long time I accepted that I should actually be feeling this way, because my illnesses changed me in those very ways. How could they not? ⁣
∘⁣
We tend to identify who we are, with what we know. I am questioning all I ‘know’, picking apart it all, and trying to nurture it and grow again. ⁣
∘⁣
I’m almost reluctant to talk about how well i’ve been doing these past few months, and I’m struggling pinpoint why. Like as if saying it out loud puts it out into the universe, and then... i’ll jinx it? I don’t know, it’s hard to articulate. It’s almost a feeling as if it’s too good to be true, so don’t say anything otherwise it’ll come back to bite you on the butt? I think I am still in shock that my health is moving in the right direction for the first time in 10 years. Sure i’ve had ‘good’ periods in that time, but they were not sustainable. All leading me into a prolonged worsen state, and there is a part of me that is terrified it’ll happen again. ⁣
∘⁣
(ya this is a long one, i’m carrying on down below!)

8 3

 
 

2019-04-12 21:03:35

Sensi Star (Indica)

Sensi Star (Indica)

9 1

 
 

2019-04-12 21:03:09

Our partners at @migraineagain carefully curate their website to maintain a wealth of helpful and factual resources for patients living with migraine. Like the AMF, Migraine Again is dedicated to spreading awareness and reducing stigma for those living with this disabling, invisible illness. Learn more about Migraine Again through the link in bio.⁣

Our partners at @migraineagain carefully curate their website to maintain a wealth of helpful and factual resources for patients living with migraine. Like the AMF, Migraine Again is dedicated to spreading awareness and reducing stigma for those living with this disabling, invisible illness. Learn more about Migraine Again through the link in bio.⁣

7 1

 
 

2019-04-12 21:02:28

Werbung:

I don't want to end up simply having visited this world. ~Mary Oliver . #nationalpoetrymonth #poems #poet #poetrycommunity #creativity #poem #poemsofinstagram #poetsofinstagram #poem #maryoliver #mantra #mindset #positivevibes #positivethoughts #positivity #quotestoliveby #inspirationalquotes #inspirational #anxiety #writer #chronicpain #motivationalquotes #spoonie #chronicillness #endometriosis #staystrong #bipolar #wellness #health #hope #mentalhealth

I don't want to end up simply having visited this world.
~Mary Oliver
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 #nationalpoetrymonth #poems #poet #poetrycommunity #creativity #poem #poemsofinstagram #poetsofinstagram #poem #maryoliver #mantra #mindset #positivevibes #positivethoughts #positivity #quotestoliveby #inspirationalquotes #inspirational #anxiety #writer #chronicpain #motivationalquotes #spoonie #chronicillness #endometriosis #staystrong #bipolar #wellness #health #hope #mentalhealth

13 1

 
 

2019-04-12 21:02:20

Werbung:

5 INGREDIENT LEMON ALMOND CAKE 🍋 🍋 _ •1 1/2 cups almond flour •4 eggs • 1/2 cup monk fruit sugar • 1/4 tblsp lemon zest • 1 tbsp almond extract (you could do without, but makes it so delicious 😋) • (OPTIONAL)1/4 cup chopped almonds or shredded coconut _ 1. Grease pan really good with butter, oil, or spray 2. In a large mixing bowl, combine 4 egg yolks and 1/2 cup monk fruit. Beat with an electric hand mixer on high speed 3 minutes or until thick. Add 1 1/2 cups almond flour and 1 Tbsp lemon zest. 3. In a second large mixing bowl, add 4 egg whites and beat together until stiff peaks form (about 2 minutes). Add one spoonful at a time into the almond batter. 4. Once all the egg whites are incorporated and batter is even in consistency (do not over-mix), transfer batter to the prepared baking pan and sprinkle the top with 1/4 cup sliced almonds. Bake at 350˚F for 30 minutes. 5. Top with powdered sugar (optional) _ #healthyfood #healthyrecipes #paleo #dairyfree #aip #organic #organiclifestyle #organiclife #natural #nongmo #glutenfree #soyfree #healthyliving #chronicillness #autoimmunediet #autoimmunedisease #eatright #healthysnacks #keto #ketodiet #lessingredients #simplefood #healthhacks #food #healthfoodie #healthyjunkie #health #ilovefood #thenewhealthy #instalike

5 INGREDIENT LEMON ALMOND CAKE 🍋 🍋 
_
•1 1/2 cups almond flour
•4 eggs • 1/2 cup monk fruit sugar • 1/4 tblsp lemon zest • 1 tbsp almond extract (you could do without, but makes it so delicious 😋)
• (OPTIONAL)1/4 cup chopped almonds or shredded coconut 
_
1. Grease pan really good with butter, oil, or spray 
2. In a large mixing bowl, combine 4 egg yolks and 1/2 cup monk fruit. Beat with an electric hand mixer on high speed 3 minutes or until thick. Add 1 1/2 cups almond flour and 1 Tbsp lemon zest.
3. In a second large mixing bowl, add 4 egg whites and beat together until stiff peaks form (about 2 minutes). Add one spoonful at a time into the almond batter.
4. Once all the egg whites are incorporated and batter is even in consistency (do not over-mix), transfer batter to the prepared baking pan and sprinkle the top with 1/4 cup sliced almonds. Bake at 350˚F for 30 minutes.
5. Top with powdered sugar (optional)
_
 #healthyfood #healthyrecipes #paleo #dairyfree #aip #organic #organiclifestyle #organiclife #natural #nongmo #glutenfree #soyfree #healthyliving #chronicillness #autoimmunediet #autoimmunedisease #eatright #healthysnacks #keto #ketodiet #lessingredients #simplefood #healthhacks #food #healthfoodie #healthyjunkie #health #ilovefood #thenewhealthy #instalike

14 0

 
 

2019-04-12 21:01:49

Werbung:

Susan bbz, you don’t get bonus points for being “sicker” than Karen! 🤦🏻‍♀️ #pleasemakeitstop #bekindtooneanother #chronicillnesstoptrumps #therearenowinnershere

Susan bbz, you don’t get bonus points for being “sicker” than Karen! 🤦🏻‍♀️ #pleasemakeitstop #bekindtooneanother #chronicillnesstoptrumps #therearenowinnershere

41 2

 
 

2019-04-12 21:01:46

Yesterday afternoon, I got an ultrasound guided cortisone injection into my right hip. After I see results (can take up to 48 hours) I'll be doing a more detailed blog post to update everyone about my hip stuff. (To learn what's wrong, go a few posts back to the MRI of my hip - gray images. Should be 5 posts back.) . Last night, my nerves and fibro decided to overreact to the cortisone injection - which is a fairly common reaction for me. I struggled to get to sleep because my whole body felt electrified, not fun. . Thankfully, I feel better today. My hips are both cranky and stiff, and my nerves are still unhappy, but definitely feel better than last night. . I'm hoping I can get in a little bit of light "exercise" this evening, without exacerbating things. Movement helps relieve the stiffness and associated pain, and I've always found gentle exercise/movement to help relieve my fibro symptoms. . ❓ Does exercise (like, going for a short walk or doing stretches - not necessarily something intense like cross fit) help with your chronic pain flares? ... ... #ChronicPain #ChronicConditions #InvisibleIllness #ChronicIllness #ChronicIllnessLife #HipPain #LabralTear #Fibromyalgia #Fibro #FMS #HipInjection #CortisoneInjection #GeneralizedHypermobilitySpectrumDisorder #GHSD #EhlersDanlosSyndrome #hEDS #Hypermobility #LooseyGoosey #JointPain

Yesterday afternoon, I got an ultrasound guided cortisone injection into my right hip. After I see results (can take up to 48 hours) I'll be doing a more detailed blog post to update everyone about my hip stuff. (To learn what's wrong, go a few posts back to the MRI of my hip - gray images. Should be 5 posts back.)
.
Last night, my nerves and fibro decided to overreact to the cortisone injection - which is a fairly common reaction for me. I struggled to get to sleep because my whole body felt electrified, not fun.
.
Thankfully, I feel better today. My hips are both cranky and stiff, and my nerves are still unhappy, but definitely feel better than last night.
.
I'm hoping I can get in a little bit of light "exercise" this evening, without exacerbating things. Movement helps relieve the stiffness and associated pain, and I've always found gentle exercise/movement to help relieve my fibro symptoms.
.
❓ Does exercise (like, going for a short walk or doing stretches - not necessarily something intense like cross fit) help with your chronic pain flares?
...
...
 #ChronicPain #ChronicConditions #InvisibleIllness #ChronicIllness #ChronicIllnessLife #HipPain #LabralTear #Fibromyalgia #Fibro #FMS #HipInjection #CortisoneInjection #GeneralizedHypermobilitySpectrumDisorder #GHSD #EhlersDanlosSyndrome #hEDS #Hypermobility #LooseyGoosey #JointPain

2 0

 
 

2019-04-12 21:01:45

Sending all my love to @team.super.damian right now 💜 - - - - - #awaywithepilepsy #epilepsy #epilepsyawareness #epileptic #epilepsysucks #seizuressuck #seizures #purpleforepilepsy #purpleformegan #epilepsyadvocate #teenadvocate #epilepsyblogger #invisibleillness #invisibledisability #chronicillness #spoonie

Sending all my love to @team.super.damian right now 💜
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-
-
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 #awaywithepilepsy #epilepsy #epilepsyawareness #epileptic #epilepsysucks #seizuressuck #seizures #purpleforepilepsy #purpleformegan #epilepsyadvocate #teenadvocate #epilepsyblogger #invisibleillness #invisibledisability #chronicillness #spoonie

5 0

 
 

2019-04-12 21:01:24

Here at LEE Services we take pride and have fun teaching Independent Living Skills✅🧼😀

Here at LEE Services we take pride and have fun teaching Independent Living Skills✅🧼😀

0 1

 
 

2019-04-12 21:01:18

Thank you Grey's Anatomy for speaking of my condition/surgery. This is what I had in 2016. They took out the vertebra, broke my back to straighten it, put a cage in along with many rods to hold it in place. They were not able to completely straighten my spine but to a 20° angle. I am completely fused from occiput/skull to pelvis. However, I am straighter (and taller🤣 finally 4'8") and I no longer have a rib sitting inside my pelvis. This was the HARDEST surgery I've been through both physically and mentally. It's weird being "straight forward" and especially straight when I was curved for 34 years. #MyCrazilyCurvedStory #GreysAnatomy #Recovery #Support #IAmTitanium #Fusion #Brave #AlwaysLookingForward #FusionSurgery #FusedFromSkullToPelvis #PositiveVibes #Mindset #Scoliosis #Kyphosis #Titanium #TetheredCord #NeverStopFighting #Scary #ChronicIllness #ChronicPain #InvisibleIllness #Warrior #Ehlersdanlossyndromekyphoscoliosis #EDS #EhlersDanlosSyndrome #Strong #MentalIllness #Surgery #KeepGoing #Strength

Thank you Grey's Anatomy for speaking of my condition/surgery. This is what I had in 2016. They took out the vertebra, broke my back to straighten it, put a cage in along with many rods to hold it in place. They were not able to completely straighten my spine but to a 20° angle. I am completely fused from occiput/skull to pelvis. However, I am straighter (and taller🤣 finally 4'8") and I no longer have a rib sitting inside my pelvis. This was the HARDEST surgery I've been through both physically and mentally. It's weird being "straight forward" and especially straight when I was curved for 34 years. 
 #MyCrazilyCurvedStory #GreysAnatomy #Recovery #Support #IAmTitanium #Fusion #Brave
 #AlwaysLookingForward #FusionSurgery #FusedFromSkullToPelvis #PositiveVibes #Mindset #Scoliosis #Kyphosis #Titanium #TetheredCord #NeverStopFighting #Scary #ChronicIllness #ChronicPain #InvisibleIllness #Warrior #Ehlersdanlossyndromekyphoscoliosis #EDS #EhlersDanlosSyndrome #Strong #MentalIllness #Surgery #KeepGoing #Strength

6 1

 
 

2019-04-12 21:01:08

Since 2010, Altus Infusion has been partnering with physicians to provide comprehensive biologic therapy services in their offices, ensuring the best standard of care at the point of service to patients. Healthcare providers benefit from increased patient management, interaction, and education — all of which can strengthen the provider-patient relationship and patient outcomes. We invite you to learn more about our services on our website [link in bio]. . . . . . . #rheumatology #rheum #gastroenterology #neurology #asthma #allergy #pulmonology #crohns #colitis #IBD #ulcerativecolitis #crohnsdisease #rheumatoidarthritis #arthritis #lupus #osteoporosis #ankylosingspondylitis #gout #psoriaticarthritis #multiplesclerosis #allergies #chronicdisease #chronicpain #chronicillness #pain #painmanagement #spoonie #health #wellness #disease

Since 2010, Altus Infusion has been partnering with physicians to provide comprehensive biologic therapy services in their offices, ensuring the best standard of care at the point of service to patients. Healthcare providers benefit from increased patient management, interaction, and education — all of which can strengthen the provider-patient relationship and patient outcomes. We invite you to learn more about our services on our website [link in bio].
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 #rheumatology #rheum #gastroenterology #neurology #asthma #allergy #pulmonology #crohns #colitis #IBD #ulcerativecolitis #crohnsdisease #rheumatoidarthritis #arthritis #lupus #osteoporosis #ankylosingspondylitis #gout #psoriaticarthritis #multiplesclerosis #allergies #chronicdisease #chronicpain #chronicillness #pain #painmanagement #spoonie #health #wellness #disease

9 0

 
 

2019-04-12 21:00:45

Balance is the constant response to change. What might have helped us balance in the past, might be tipping us over in the other direction now. We have to keep constantly adapting to what’s happening both inside and outside of us. For me, this means adding in extra stress reduction when I need it, or giving myself more rest. There is no one recipe that will solve our problems for the rest of our lives. Having many tools that we can use will serve us better in the long run, as our lives develop and change. Above is a great learning from my YTT, I am so inspired by the teachers, not only in the physical practice of yoga but the spiritual and philosophical practice. . . . . #migraine #chronicmigraine #invisibleillness #invisibleillnesswarrior #migrainewarrior #migrainelife #spoonie #spooniewarrior #chronicillness #chronicillnesswarrior #wherethetiredgirlsare #wellness

Balance is the constant response to change. What might have helped us balance in the past, might be tipping us over in the other direction now. We have to keep constantly adapting to what’s happening both inside and outside of us. For me, this means adding in extra stress reduction when I need it, or giving myself more rest. There is no one recipe that will solve our problems for the rest of our lives. Having many tools that we can use will serve us better in the long run, as our lives develop and change. 
Above is a great learning from my YTT, I am so inspired by the teachers, not only in the physical practice of yoga but the spiritual and philosophical practice.
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 #migraine #chronicmigraine #invisibleillness #invisibleillnesswarrior #migrainewarrior #migrainelife #spoonie #spooniewarrior #chronicillness #chronicillnesswarrior #wherethetiredgirlsare #wellness

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2019-04-12 21:00:06

Werbung:

Friday movie at the recuperation station! Long Lost has gotten some indie almost genius hype. I’m a sucker for low budget psychological thrillers that actually pull off the thrill & are successful in the act of sustaining true tension. I guess I’ll see what’s up. Karyn Kusama’s The Destroyer is on board for tonight. 👽💋 #cinephile #staystrong #stayhumble #staygrateful #chronicillness #chronicillnesswarrior #sickchic #disability #emotions #♿️ #ablesismexists #emotionalhealth #anxiety #copingskills #emotionalsustainability #complexptsd #ptsd #trauma #mentalhealth #mentalillness #chronicillnesslife #vasculitis #perniciousanemia #autoimmunedisease

Friday movie at the recuperation station! Long Lost has gotten some indie almost genius hype. I’m a sucker for low budget psychological thrillers that actually pull off the thrill & are successful in the act of sustaining true tension. I guess I’ll see what’s up. Karyn Kusama’s The Destroyer is on board for tonight. 👽💋 #cinephile #staystrong #stayhumble #staygrateful #chronicillness #chronicillnesswarrior #sickchic #disability #emotions #♿️ #ablesismexists #emotionalhealth #anxiety  #copingskills #emotionalsustainability #complexptsd #ptsd #trauma 
 #mentalhealth #mentalillness #chronicillnesslife #vasculitis #perniciousanemia #autoimmunedisease

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2019-04-12 21:00:01

Werbung:

I see so many fabulous posts on here that I’m going to start doing ‘My Friday Favs’ by selecting posts throughout the week to re share on Fridays as my favourites from the week.. These posts will be ones related to raising awareness and/or supporting others with invisible illness.. 💛🌼 . . . . #MyFridayFavs #365BalanceProject #RaisingAwareness #SupportingOthers #Invisibleillness #Chronicillness #MyFavouritePosts #VestibularMigraine #ChronicMigraine #ChronicFatigue #Depression #Anxiety #Stress #MentalHealth #Menieres #Positivity #Lupus #MS #EDS #BPD #Crohns #Colitis #IBS #ChairiMalformation

I see so many fabulous posts on here that I’m going to start doing ‘My Friday Favs’ by selecting posts throughout the week to re share on Fridays as my favourites from the week.. These posts will be ones related to raising awareness and/or supporting others with invisible illness.. 💛🌼
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 #MyFridayFavs #365BalanceProject #RaisingAwareness #SupportingOthers #Invisibleillness #Chronicillness #MyFavouritePosts #VestibularMigraine #ChronicMigraine #ChronicFatigue #Depression #Anxiety #Stress #MentalHealth #Menieres #Positivity #Lupus #MS #EDS #BPD #Crohns #Colitis #IBS #ChairiMalformation

3 1

 
 

2019-04-12 20:59:21

Shout out 👋 to all of us doing our best to live with chronic illness. I'm proud of you 👏 and I appreciate 🙏 everything you share online. It helps! 🌷🌻🐝 #tryingmybest #strongertogether #together #thankyou #shoutout #chronic #chronicillness #youandme

Shout out 👋 to all of us doing our best to live with chronic illness. I'm proud of you 👏 and I appreciate 🙏 everything you share online. It helps! 🌷🌻🐝 #tryingmybest #strongertogether #together #thankyou #shoutout #chronic #chronicillness #youandme

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2019-04-12 20:59:12

Werbung:

Dirty job today. Cleaning day for them than the bathroom. Since I have some free time. These badly need a cleaning, downside to both of us working. Need more time in a day to much to do. Some of these where my mother's and have not been cleaned in who knows how long. #Grnfibrofhighter #mmjpatient #mmjlife #cbdlife #chronicillness

Dirty job today. Cleaning day for them than the bathroom. Since I have some free time. These badly need a cleaning, downside to both of us working. Need more time in a day to much to do. Some of these where my mother's and have not been cleaned in who knows how long. 
 #Grnfibrofhighter #mmjpatient #mmjlife #cbdlife #chronicillness

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2019-04-12 20:58:11

Werbung:

Sometimes I shock myself with the clever things I say and do. Other times I try to get out of the car with my seatbelt on ✖✖✖✖✖✖✖✖✖✖⠀ ✖✖✖✖✖✖✖✖✖✖⠀ #justliveblognl #chronischziek #chronischepijn #chronicfatigue #chronicpain #chronicillness #chronicallyill #spoonie #spoonielife #spoonieproblems #fibrowarrior #pain #spooniecommunity #spooniesupport #quotes #lifequotes #diabetes #diabetic #endometriosis #warrior #fibromyalgia #depressions #ptsd #spooniewarrior #diabeticgirl #spooniesisters #spooniesupport #spooniesunite #endometriosis #motivationalquotes #fibrofog

Sometimes I shock myself with the clever things I say and do. Other times I try to get out of the car with my seatbelt on
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 #justliveblognl #chronischziek #chronischepijn #chronicfatigue #chronicpain #chronicillness #chronicallyill #spoonie #spoonielife #spoonieproblems #fibrowarrior #pain #spooniecommunity #spooniesupport #quotes #lifequotes #diabetes #diabetic #endometriosis #warrior #fibromyalgia #depressions #ptsd #spooniewarrior #diabeticgirl #spooniesisters #spooniesupport #spooniesunite #endometriosis #motivationalquotes #fibrofog

7 1

 
 

2019-04-12 20:57:07

Werbung:

Have you seen what’s happening in our #wickedwindow ?? . Come by 327 Bank Street to see our new fundraiser art installation, and buy raffle tickets for a chance to take home one of the unique pieces 💚 . . . . . #fundraiser #localartist #localart #community #compassionatecare #cannabis #420 #ottawaart #myottawa #ottycity #support613 #artraffle #raffle #allbodiesaregoodbodies #chronicillness #spoonie

Have you seen what’s happening in our #wickedwindow ??
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Come by 327 Bank Street to see our new fundraiser art installation, and buy raffle tickets for a chance to take home one of the unique pieces 💚
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 #fundraiser #localartist #localart #community #compassionatecare #cannabis #420 #ottawaart #myottawa #ottycity #support613 #artraffle #raffle #allbodiesaregoodbodies #chronicillness #spoonie

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2019-04-12 20:57:01

Clynnog Fawr, still beautiful, still one of my favourite places #mscansuckit #mswarrior #fums #spoonie #chronicillness #wheelchair #wheelchairlife #wheelchairwarrior #wheelchairfitness #lgbtspoonies #lgbtq #girlswhokissgirls #instalesbians

Clynnog Fawr, still beautiful, still one of my favourite places #mscansuckit #mswarrior #fums #spoonie #chronicillness #wheelchair #wheelchairlife #wheelchairwarrior #wheelchairfitness #lgbtspoonies #lgbtq #girlswhokissgirls #instalesbians

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2019-04-12 20:56:55

Werbung:

Echo Connection. A foundation of Kannaway provides support for special case families and individuals that count on cannabinoids or CBD . All proceeds coming from membership fees goes to Echo Connection Foundation🙏

Echo Connection. A foundation of Kannaway provides support for special case families and individuals that count on cannabinoids or CBD . All proceeds coming from membership fees goes to Echo Connection Foundation🙏

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2019-04-12 20:56:52

Werbung:

In full swing last week representing the importance of patient engagement and involvement as equal stakeholders in Amsterdam at the Healthy Measures High-level Roundtable entitled “Outcome-based healthcare: From policy to action and impact” with Science Business. A great day with some great people agreeing that when it comes to policy and research “there should be nothing about us, without us” 🙌🏻

In full swing last week representing the importance of patient engagement and involvement as equal stakeholders in Amsterdam at the Healthy Measures High-level Roundtable entitled “Outcome-based healthcare: From policy to action and impact” with Science Business. A great day with some great people agreeing that when it comes to policy and research “there should be nothing about us, without us” 🙌🏻

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2019-04-12 20:55:13

Memories keep popping up: I genuinely didn’t think I would ever get home. I’m so grateful for every moment I have with this precious human being 🥰 #lucky #chronicillness #thisgirlcan

Memories keep popping up: I genuinely didn’t think I would ever get home. I’m so grateful for every moment I have with this precious human being 🥰 #lucky #chronicillness #thisgirlcan

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2019-04-12 20:54:02

Spoonies #spooniestrong #spooniesupport #msawareness2019 #chronicillness #multiplesclerosisfoundation #fibromyalgia #powerport #tysabri

Spoonies #spooniestrong #spooniesupport #msawareness2019 #chronicillness #multiplesclerosisfoundation #fibromyalgia #powerport #tysabri

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2019-04-12 20:53:35

Hey Everyone ! My name is Ashley and i am 26 years old. I have been diagnosed with fibromyalgia and chronic fatigue since about 12 years old. I also have migraines starting at an earlier age. I have had my ups and downs. I started by being bed bound when i was first diagnosed. Went to an in patient pain program as a sophomore in highschool. Rowed competitively my senior year. Then i broke my foot first yer in college and had a huge flare. Changes up meds and i was doing alright until last year. I was sick alot and had pnemonia in november which i think has triggered one of the worst dlares i have had in years. With a change of medications and some more testing. Hopefully i will start to feel better. At the moment i have had to take a leave of absence from work as my fibro and cfs/me is so bad. This is my journey with chronic illness and trying to live a healthier life and achieve goals and dreams. #fibromyalgia #fibromyalgiawarrior #cfs #me #chronicfatiguesyndrome #invisableillness #invisableillnessawareness #fibromyalgiasuckshardcore #fibromyalgiasucks #chronicmigraines #chronicillness #spoonielife #spoonie #chronicspoonie #chronicfatigue #exhausted #noenergyleft #fibrowarrior💜 #fibromyalgiaisreal #fibrofighter #migrainewarrior #migraineawareness #chronicfatiguefighter #invisibleillnesswarrior

Hey Everyone ! My name is Ashley and i am 26 years old. I have been diagnosed with fibromyalgia and chronic fatigue since about 12 years old. I also have migraines starting at an earlier age. I have had my ups and downs. I started by being bed bound when i was first diagnosed. Went to an in patient pain program as a sophomore in highschool. Rowed competitively my senior year. Then i broke my foot first yer in college and had a huge flare. Changes up meds and i was doing alright until last year. I was sick alot and had pnemonia in november which i think has triggered one of the worst dlares i have had in years. With a change of medications and some more testing. Hopefully i will start to feel better. At the moment i have had to take a leave of absence from work as my fibro and cfs/me is so bad. This is my journey with chronic illness and trying to live a healthier life and achieve goals and dreams.

 #fibromyalgia #fibromyalgiawarrior #cfs #me #chronicfatiguesyndrome #invisableillness #invisableillnessawareness #fibromyalgiasuckshardcore #fibromyalgiasucks #chronicmigraines #chronicillness #spoonielife #spoonie 
 #chronicspoonie #chronicfatigue  #exhausted #noenergyleft #fibrowarrior💜 #fibromyalgiaisreal #fibrofighter #migrainewarrior #migraineawareness #chronicfatiguefighter #invisibleillnesswarrior

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2019-04-12 20:53:19

I’ve been living in pjs and no makeup that past couple days. I need sun my freckles are so light you can’t see them right now. I started and finished a book last night felt pretty great. #chronicillness #fibromyalgia #invisibleillness #chronicpain #natural #imtired #chronicwarrior #chronicillnessawareness #chronicallyawesome

I’ve been living in pjs and no makeup that past couple days. I need sun my freckles are so light you can’t see them right now. I started and finished a book last night felt pretty great. #chronicillness #fibromyalgia #invisibleillness #chronicpain #natural #imtired #chronicwarrior #chronicillnessawareness #chronicallyawesome

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2019-04-12 20:52:31

When everything was at it’s apex, I was a mess of pain, daily migraines, brain fog, severe fatigue, an emotional mess and confused as all heck. I remember when I went off of work, I stopped in at my local @chaptersindigo and looked at all of my favourite stationary and pens. I used to always buy hustle related and inspirational items. They would make me feel amazing. That first time I went in after I left work, I left extremely upset. I couldn’t buy these, because that’s not who I was anymore. I lost her. I was lost. This simple errand caused a lot tears and agony. Yesterday, I ran into that same @chaptersindigo and felt myself aligning to my inner strength again. Keep going! You may not know how to or where to go, but just keep going. Have faith that you’ll discover what you need to, when you need to. . . . . . . . . #journey #mindfulness #healthy #healing #love #chronicpain #chronicfatigue #spiritjunkie #thehealerista #chronicillness #fibrowarrior #imvisibleillness #gratitude #mindful #gabbybernstein #theuniversehasyourback #positivity #disability #awakening #butyoudontlooksick #fibromyalgia #selflove #wisdom #quoteoftheday #meditation #positivevibes #invisibleillness #lawofattraction #chapters #paper

When everything was at it’s apex, I was a mess of pain, daily migraines, brain fog, severe fatigue, an emotional mess and confused as all heck. I remember when I went off of work, I stopped in at my local @chaptersindigo and looked at all of my favourite stationary and pens. I used to always buy hustle related and inspirational items. They would make me feel amazing. That first time I went in after I left work, I left extremely upset. I couldn’t buy these, because that’s not who I was anymore. I lost her. I was lost. This simple errand caused a lot tears and agony. Yesterday, I ran into that same @chaptersindigo and felt myself aligning to my inner strength again. Keep going! You may not know how to or where to go, but just keep going. Have faith that you’ll discover what you need to, when you need to. .
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 #journey #mindfulness #healthy #healing #love #chronicpain #chronicfatigue #spiritjunkie #thehealerista #chronicillness #fibrowarrior #imvisibleillness #gratitude #mindful #gabbybernstein #theuniversehasyourback #positivity #disability #awakening #butyoudontlooksick #fibromyalgia #selflove #wisdom #quoteoftheday #meditation #positivevibes #invisibleillness #lawofattraction #chapters #paper

16 2

 
 

2019-04-12 20:52:08

Crazy how one day I’m MS is kicking my butt & the next I wake up almost feeling like myself. Multiple Sclerosis takes me on some tremendous roller coaster rides. It’s key moving forward to eliminate any stress from life as much as I can. It is definitely the number one killer for me right now. I’m just grateful I’m upright and feeling better. Wishing you all a great weekend 🙏🏼💖🦋 #mssyptoms #msisahiddendisease #msfighterforlife #mswarrior #chronicillness #msselfie #curems #imperfectlyperfect #itsokaynottobeokay #acceptyourpain #alwaysseeksolutions #dontjudgeyourself #bekindtoyourbody #weareonlyhuman #meditationpractice #meditateonpain #speakthetruth #healthydietiskey #yogachallengesme #yogaformyhealth #yogahelpsmyspirit #yogainspiration #yogisoul #yogabalance #stregthinyoga #yogaforstrength #neverstoptrying #loveyourbestlife #lovetheimperfectme

Crazy how one day I’m MS is kicking my butt & the next I wake up almost feeling like myself. Multiple Sclerosis takes me on some tremendous roller coaster rides. It’s key moving forward to eliminate any stress from life as much as I can. It is definitely the number one killer for me right now. I’m just grateful I’m upright and feeling better. Wishing you all a great weekend 🙏🏼💖🦋 #mssyptoms #msisahiddendisease #msfighterforlife #mswarrior #chronicillness #msselfie #curems #imperfectlyperfect #itsokaynottobeokay #acceptyourpain #alwaysseeksolutions #dontjudgeyourself #bekindtoyourbody #weareonlyhuman #meditationpractice #meditateonpain #speakthetruth #healthydietiskey #yogachallengesme #yogaformyhealth #yogahelpsmyspirit #yogainspiration #yogisoul #yogabalance #stregthinyoga #yogaforstrength #neverstoptrying #loveyourbestlife #lovetheimperfectme

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2019-04-12 20:51:24

Incredible post by our friends over @greatcbdreviews. If you haven't already give them a follow and read more about their story and amazing content! We are more than grateful to have such an amazing group of people be dedicated to providing real and non biased reviews on products across the industry. There are a lot of good and bad products out there and big thanks to @greatcbdreviews for all their hard work. Looking forward to a Big 2019✨ • • • • • #Repost @greatcbdreviews • • • • • Repost @cbd.how While cannabinoids are found in cannabis, our bodies produce cannabinoids naturally as part of our biology. These are known as endocannabinoids (endo- within the body). . Both endocannabinoids and phytocannabinoids are messaging molecules used by the ECS. Think of the ECS as a lock (receptors) and key (cannabinoids) system, with endocannabinoids and phytocannabinoids being two different keys that can access the same locks. . Learn more about CBD by visiting https://www.cbd.how/what-is-cbd/ or click the link in our bio.🌿 . . Are you @420withcbdreviews ? @green.reach @cbd.how @cbdunfiltered @talkcbdtv @cookingwithcbd @beplantorg . #endocannabinoids #cannabinoids #cannabiseducation #cbd #cbdeducation #themoreyouknow #fullspectrum #cbdoil #lupus #autism #autismawareness #medicalcannabis #mmj #endthestigma #stopthestigma #educatebeforeyoumedicate #chronicillness #chronicillnesswarrior #cbdforthepeople #endometriosis #plantbased #420 #cbdmovement #plantsnotpills #selfhealing #holistichealth #epilepsy

Incredible post by our friends over @greatcbdreviews. If you haven't already give them a follow and read more about their story and amazing content! We are more than grateful to have such an amazing group of people be dedicated to providing real and non biased reviews on products across the industry. There are a lot of good and bad products out there and big thanks to @greatcbdreviews for all their hard work. Looking forward to a Big 2019✨
• • • • •
 #Repost @greatcbdreviews
• • • • •
Repost @cbd.how While cannabinoids are found in cannabis, our bodies produce cannabinoids naturally as part of our biology. These are known as endocannabinoids (endo- within the body).
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Both endocannabinoids and phytocannabinoids are messaging molecules used by the ECS. Think of the ECS as a lock (receptors) and key (cannabinoids) system, with endocannabinoids and phytocannabinoids being two different keys that can access the same locks.
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Learn more about CBD by visiting https://www.cbd.how/what-is-cbd/ or click the link in our bio.🌿
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Are you @420withcbdreviews ?
@green.reach
@cbd.how
@cbdunfiltered
@talkcbdtv
@cookingwithcbd
@beplantorg
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 #endocannabinoids #cannabinoids #cannabiseducation #cbd #cbdeducation #themoreyouknow #fullspectrum #cbdoil #lupus #autism #autismawareness #medicalcannabis #mmj #endthestigma #stopthestigma #educatebeforeyoumedicate #chronicillness #chronicillnesswarrior #cbdforthepeople #endometriosis #plantbased #420 #cbdmovement #plantsnotpills #selfhealing #holistichealth #epilepsy

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2019-04-12 20:51:24

Werbung:

😂😂😂😂 what kind of madness is this! Madness that deffo amuses me! Lol #giggles it’s one way to teleport at least!! 😂🤣😆💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard #chronicfatiguesyndrome

😂😂😂😂 what kind of madness is this! Madness that deffo amuses me! Lol #giggles it’s one way to teleport at least!! 😂🤣😆💜 #fibromyalgia #chronicillness #chronicpain #spoonie #fibromyalgiaawareness #depression #anxiety #asthma #life #spoonielife #butyoudontlooksick #mylife #pain #tired #exhausted #love #reptiles #me #lizard #chronicfatiguesyndrome

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2019-04-12 20:51:19

Werbung:

I can’t even begin to express how amazed (a wee tad overwhelmed -eek!) I am by the hugeee response on my last post! 🙈 I’m sorry it’s taken me this long to acknowledge it, totally not intentional but I’ve been busting my butt off trying to get the house in some sort of presentable state ready for my friends coming this weekend, so every ounce of energy I’ve had this week has gone into tidying/cleaning and replying to comments and messages has sadly just not happened yet but I will get there, I promise! Thank you thank you thank you for all of the love, messages and new followers. It’s just bloody amazing and I’m so very grateful 💕 • Currently *very* out of spoons, feeling pretty dreadful with an ongoing sinus infection and wisdom tooth teething, plus my period just came (a week late so cramps are literally from hell) and that always messes with my POTS. But despite all of that I am sooo super excited to see my girl friends this weekend (it’s been far too long since we’ve all been together) and I’m really hoping I’ll feel a little more human in the morning ready to have some much needed quality time with them. • Do you have any plans for this weekend? I hope you feel ok and have a good one! 💕 • {T shirt was won in a giveaway from @spooniesistershop, I highly recommend Michelle’s shop; her products are great quality and very spoonie appropriate!}

I can’t even begin to express how amazed (a wee tad overwhelmed -eek!) I am by the hugeee response on my last post! 🙈
I’m sorry it’s taken me this long to acknowledge it, totally not intentional but I’ve been busting my butt off trying to get the house in some sort of presentable state ready for my friends coming this weekend, so every ounce of energy I’ve had this week has gone into tidying/cleaning and replying to comments and messages has sadly just not happened yet but I will get there, I promise!
Thank you thank you thank you for all of the love, messages and new followers. It’s just bloody amazing and I’m so very grateful 💕
•
Currently *very* out of spoons, feeling pretty dreadful with an ongoing sinus infection and wisdom tooth teething, plus my period just came (a week late so cramps are literally from hell) and that always messes with my POTS. But despite all of that I am sooo super excited to see my girl friends this weekend (it’s been far too long since we’ve all been together) and I’m really hoping I’ll feel a little more human in the morning ready to have some much needed quality time with them.
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Do you have any plans for this weekend? I hope you feel ok and have a good one! 💕
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{T shirt was won in a giveaway from @spooniesistershop, I highly recommend Michelle’s shop; her products are great quality and very spoonie appropriate!}

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2019-04-12 20:51:02

Werbung:

When everything hurts and nothing is okay but you just have to keep going because that's the only option. #weed #bodypositive #girlswhogethigh #stonergirl #medicalmarijuana #smokeweedeveryday #pansexual #stoner #stoned #high #marijuana #weshouldsmoke #girlswhosmokeweed #girlswhodab #i502 #chronicillness #bud #dabs #curvesnchronic #highlife #420 #pnwstoners #blaze #dailydabbers #prettypothead #kush #dab #cannabis #seattlestoners #terps

When everything hurts and nothing is okay but you just have to keep going because that's the only option. #weed #bodypositive #girlswhogethigh #stonergirl #medicalmarijuana #smokeweedeveryday #pansexual #stoner #stoned #high #marijuana #weshouldsmoke #girlswhosmokeweed #girlswhodab #i502 #chronicillness #bud #dabs #curvesnchronic #highlife #420 #pnwstoners #blaze #dailydabbers #prettypothead #kush #dab #cannabis #seattlestoners #terps

21 0

 
 

2019-04-12 20:50:49

something I need to remember through these horrible days☁️🌸☕️

something I need to remember through these horrible days☁️🌸☕️

11 1

 
 

2019-04-12 20:50:33

Let’s talk health insurance. Until last year I was on my moms insurances. She works for a really good hospital so the Insurance was phenomenal. I had 2 major kidney surgeries, weekly ER visit and 5 extended hospital stays. I paid a minuscule amount for all of this. She normally took care of all the insurance stuff and j just paid the bills. So I am not afraid to admit when I was thrown into the world of getting my own insurance I was legit distraught. The amount I pay each month and what I get out of it is honestly ridiculous. The loop holes I have to go through to get anything done amazes me. Today I saw 2 doctors and was prescribed 5 medications. I get to the pharmacy to pick them and the girls tells me “oh so your insurance does not cover 3 of the medications, so your total is $1700 will you be paying cash or card”. First of all who the hell just carries $1700 cash around with them. Second of all it’s going to be a neither from me, guess I’ll just die. The saddest part is one of the medications we use where I work and it cost $70 for a bottle of 100 from the manufacturer. However, they are selling 60 to me for $917.12. That up sell is out of control, thanks big pharma. I was just standing there like you have got to be kidding me. The health care system in America is beyond flawed. For someone with a chronic illness you can barely work because of the pain but you have to work to spend your money on health insurance monthly premiums that rarely cover what you need and then all the stuff you actually need that they don’t cover on top of that. It is absolutely crazy to me and something I can’t barely wrap my head around. All right, still annoyed but that ends my insurance rant for the day. . . . . . . #chronicillness #chronicpain #spoonie #invisibleillness #fibromyalgia #spoonielife #chronicfatigue #endo #autoimmunedisease #anxiety #mentalhealth #depression #pain #chronicillnesswarrior #health #endometriosis #endoawareness #butyoudontlooksick #ckd #fibro #chronicfatiguesyndrome #love #chronicpainwarrior #disability #chronicallyill #endometriosis #babesforendo #endowarrior #endometriosisawareness

Let’s talk health insurance. Until last year I was on my moms insurances. She works for a really good hospital so the Insurance was phenomenal. I had 2 major kidney surgeries, weekly ER visit and 5 extended hospital stays. I paid a minuscule amount for all of this. She normally took care of all the insurance stuff and j just paid the bills. So I am not afraid to admit when I was thrown into the world of getting my own insurance I was legit distraught. The amount I pay each month and what I get out of it is honestly ridiculous. The loop holes I have to go through to get anything done amazes me. Today I saw 2 doctors and was prescribed 5 medications. I get to the pharmacy to pick them and the girls tells me “oh so your insurance does not cover 3 of the medications, so your total is $1700 will you be paying cash or card”. First of all who the hell just carries $1700 cash around with them. Second of all it’s going to be a neither from me, guess I’ll just die. The saddest part is one of the medications we use where I work and it cost $70 for a bottle of 100 from the manufacturer. However, they are selling 60 to me for $917.12. That up sell is out of control, thanks big pharma. I was just standing there like you have got to be kidding me. The health care system in America is beyond flawed. For someone with a chronic illness you can barely work because of the pain but you have to work to spend your money on health insurance monthly premiums that rarely cover what you need and then all the stuff you actually need that they don’t cover on top of that. It is absolutely crazy to me and something I can’t barely wrap my head around. All right, still annoyed but that ends my insurance rant for the day. .
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 #chronicillness #chronicpain #spoonie #invisibleillness #fibromyalgia #spoonielife #chronicfatigue #endo #autoimmunedisease #anxiety #mentalhealth #depression #pain #chronicillnesswarrior #health #endometriosis #endoawareness #butyoudontlooksick #ckd #fibro #chronicfatiguesyndrome #love #chronicpainwarrior #disability #chronicallyill #endometriosis #babesforendo #endowarrior #endometriosisawareness

18 2

 
 

2019-04-12 20:49:46

At my #MS dx (‘04), neuros were still advising their patients to avoid exercise. “Rest, rest, rest!” This quickly changed- we understand pseudo flares and know staying active is critical. I have always been stubborn (still am- ask Grant 🤣) so the original directive didn’t faze me. I continued running, cycling, hot yoga, tennis, hiking- until I couldn’t. • • Running ceased 1st- not a huge loss since I‘ve always deeply loathed it. Tennis & cycling were next- my racquet hit my shins more than the ball and I ate the pavement more than I pedaled. (My bike is prob still in the Port Royal parking garage in Old Town.) Hiking was a joke- legs were jello in mins. With all attempts failing, I was welcomed into senior chair yoga, but the instructor passed (ALS) and it crushed my spirit. • • So I acquired a refractory case of #ExerciseEnvy. I am reminded my body isn’t a “gym body” every single time. The accessible doors are never working and the only chairs are holding everyone’s coats/bags (who needs that much shit for a workout?) But my mobility aid is the glaring sign I don’t belong. • • I’m far from alone- many people feel self conscious in a gym. But what kills me is the ability some have to walk in and SOLELY get after a good workout. I’m evaluating stiffness in my legs, figuring out how to stay upright, weighing the risk of rowing for 3 mins vs 2.5, wincing through colon spasms, willing tremors to ease and vertigo to abate. • • Don’t get me wrong. My trainer anticipates my challenges and puts in the work to adapt exercises. But dammit, I want to be kicking the F out of the punching bag, I want to do 3 mins of burning lunges, I want to shoot him death glares after a brutal session. I feel a deep sadness that I don’t have that option. • • TBH I don’t give myself credit for what I still do. It hasn’t been easy (mostly glorified movement) but I have never stopped moving. Holding steady at 6.0 on the EDDS is evidence of that. But envy haunts me. I actively reframe my experience and remind myself to stop competing. “You‘re doing the best you can w/ what you’ve got,” I whisper, still longing after my healthier, able bodied peers. Progress, not perfection. #ThisIsMS

At my #MS dx (‘04), neuros were still advising their patients to avoid exercise. “Rest, rest, rest!” This quickly changed- we understand pseudo flares and know staying active is critical. I have always been stubborn (still am- ask Grant 🤣) so the original directive didn’t faze me. I continued running, cycling, hot yoga, tennis, hiking- until I couldn’t.
•
•
Running ceased 1st- not a huge loss since I‘ve always deeply loathed it. Tennis & cycling were next- my racquet hit my shins more than the ball and I ate the pavement more than I pedaled. (My bike is prob still in the Port Royal parking garage in Old Town.) Hiking was a joke- legs were jello in mins. With all attempts failing, I was welcomed into senior chair yoga, but the instructor passed (ALS) and it crushed my spirit.
•
•
So I acquired a refractory case of #ExerciseEnvy. I am reminded my body isn’t a “gym body” every single time. The accessible doors are never working and the only chairs are holding everyone’s coats/bags (who needs that much shit for a workout?) But my mobility aid is the glaring sign I don’t belong. •
•
I’m far from alone- many people feel self conscious in a gym. But what kills me is the ability some have to walk in and SOLELY get after a good workout. I’m evaluating stiffness in my legs, figuring out how to stay upright, weighing the risk of rowing for 3 mins vs 2.5, wincing through colon spasms, willing tremors to ease and vertigo to abate. •
•
Don’t get me wrong. My trainer anticipates my challenges and puts in the work to adapt exercises. But dammit, I want to be kicking the F out of the punching bag, I want to do 3 mins of burning lunges, I want to shoot him death glares after a brutal session. I feel a deep sadness that I don’t have that option. •
•
TBH I don’t give myself credit for what I still do. It hasn’t been easy (mostly glorified movement) but I have never stopped moving. Holding steady at 6.0 on the EDDS is evidence of that. But envy haunts me. I actively reframe my experience and remind myself to stop competing. “You‘re doing the best you can w/ what you’ve got,” I whisper, still longing after my healthier, able bodied peers. Progress, not perfection. #ThisIsMS

78 16

 
 

2019-04-12 19:00:04

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Having joint pain today 😪 I've been super stressed out about a workshop I have tomorrow. Having lots of stress on my shoulders • • • Hoy tengo dolor de articulaciones 😪 he estado super estresada por un taller que tengo que dar mañana. Tengo mucho peso sobre mis hombros

Having joint pain today 😪 I've been super stressed out about a workshop I have tomorrow. Having lots of stress on my shoulders •
•
•
Hoy tengo dolor de articulaciones 😪 he estado super estresada por un taller que tengo que dar mañana. Tengo mucho peso sobre mis hombros

4 1

 
 

2019-04-12 18:02:31

Thank you so much @crohnsandcolitisuk for sharing my story. Very proud to be associated with your charity and so impressed with the work you do! You can find my story on their page ~ 👍🏻 Posted @withrepost • @crohnsandcolitisuk Hi, my name is Ellie. I’m 22 years old and was diagnosed with Colitis at the age of 21. 🔸 I was at University when I was diagnosed and also working for the NHS. My attendance was low and I often had time off from work due to sickness which I couldn’t explain. I had ulcers in my mouth every week, to the point where eating, drinking and speaking became incredibly painful. I experienced daily stomach pain, frequent trips to the toilet and extreme fatigue for over a year, which all went unexplained. Many visits to the GP and still nothing was explained. It affected my life in ways I couldn’t imagine - I became too tired to visit friends, struggled too much to continue with work and struggled to continue doing things I enjoyed. 🔸 I was eventually admitted to hospital in August 2017 as a result Of what turned out to be a severe flare up. I was in hospital for two weeks, but will be forever grateful because in this time I finally received my diagnosis of ulcerative colitis. Understanding my condition helped me to understand my body and accept that it is different to other people my age. 🔸 I’ve learned to love my body despite my Colitis. I understand now to make the best of my time in remission and to identify and rest during times of flare up. I still struggle, but every day it gets easier. I am on the path to follow my dream of completing a medicine degree, back on track with my fitness, and enjoying life with my family. 🔸 I hope my story shows Colitis in its realest form and how much it can affect your life. I also hope it brings hope, that you can learn to live with Colitis and learn to enrich and fulfil your life in new ways. 🔸 #ItTakesGuts to talk about Crohn’s and Colitis... This is Ellie’s story. @ellie_broadrick

Thank you so much @crohnsandcolitisuk for sharing my story. Very proud to be associated with your charity and so impressed with the work you do! You can find my story on their page ~ 👍🏻 Posted @withrepost • @crohnsandcolitisuk Hi, my name is Ellie. I’m 22 years old and was diagnosed with Colitis at the age of 21. 🔸
I was at University when I was diagnosed and also working for the NHS. My attendance was low and I often had time off from work due to sickness which I couldn’t explain. I had ulcers in my mouth every week, to the point where eating, drinking and speaking became incredibly painful. I experienced daily stomach pain, frequent trips to the toilet and extreme fatigue for over a year, which all went unexplained. Many visits to the GP and still nothing was explained. It affected my life in ways I couldn’t imagine - I became too tired to visit friends, struggled too much to continue with work and struggled to continue doing things I enjoyed. 🔸
I was eventually admitted to hospital in August 2017 as a result Of what turned out to be a severe flare up. I was in hospital for two weeks, but will be forever grateful because in this time I finally received my diagnosis of ulcerative colitis. Understanding my condition helped me to understand my body and accept that it is different to other people my age. 🔸
I’ve learned to love my body despite my Colitis. I understand now to make the best of my time in remission and to identify and rest during times of flare up. I still struggle, but every day it gets easier. I am on the path to follow my dream of completing a medicine degree, back on track with my fitness, and enjoying life with my family.
🔸
I hope my story shows Colitis in its realest form and how much it can affect your life. I also hope it brings hope, that you can learn to live with Colitis and learn to enrich and fulfil your life in new ways.
🔸
 #ItTakesGuts to talk about Crohn’s and Colitis... This is Ellie’s story. @ellie_broadrick

71 9

 
 

2019-04-12 14:04:00

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#poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

 #poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie  #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

4 0

 
 

2019-04-12 13:47:37

#poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

 #poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie  #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

4 0

 
 

2019-04-12 13:47:19

#poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

 #poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie  #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

8 0

 
 

2019-04-12 13:38:39

#poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

 #poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie  #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

6 0

 
 

2019-04-12 13:38:23

#poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

 #poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie  #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

8 0

 
 

2019-04-09 13:01:38

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#poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

 #poésie #poesie #poet #instapoem #instapoet #igpoem #ecriture #litterature #poesiecontemporaine #auteur #writting #lovepoems #lovepoetry #stylo #maladie  #maladierare #souffrance #courage #combat #gastroparesis #gastroparesie #medecine #nuit #nuitblanche #nuitsblanches #therapy #therapie #poesietherapie #chronicillness #chronicpainwarrior

15 0

 
 

2019-04-08 20:45:25

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